but am not feeling well so drinking the water required wasn't too good and eventually the inevitable happended. I threw up. Thankfully I made it to the bathroom and maintained bladder control. I'm not feeling great with acute cold symptoms, got upset as the first thought in my head now was that I would be unable to have my scan. Thankfully they were able to and got a clear image. When done I came home and straight to bed with some honey lemon and paracetamol after phoning work to let them know I wouldn't be in.
I've finally had a letter from the Gynae team. This included an apology for the misunderstanding that occurred and details I have been waiting for since my op 3 weeks ago. He is not concerned about my bulky uterus and would not pursue further investigations for what he considers is a very common finding in a lot of women with no subsequent implications. I've yet to be convinced about that. I will be interested to see if there has been any change in the measurements from today's scan which I will find out next Tuesday.
I have had a busy weekend including meeting up with a fellow blogger Jill who is over from Canada on holiday with her husband Jean. Thank you both for a lovely afternoon in Bath I felt privileged to be with you both and it felt like we'd known each other for years. My photo's didn't come out as well as yours so I clearly need more practice....
Hi and Welcome to Sue's World. I started this blog to keep family and friends informed after being diagnosed with Breast Cancer in February 2009. In March 2011 I was diagnosed with Secondary Breast Cancer. This is about my treatment and how things are going, but mainly to keep them amused with the silly little things that happen to me!!! Read on with interest and please feel free to make any comments, serious or fun, it all helps!!! Sue xx
Monday, 27 June 2011
Friday, 17 June 2011
Another long wait for test results
but now they are in I have more questions. It has been confirmed that my Ovaries and Fallopian tubes contained Lobular Breast Cancer. My womb has been checked and it is unlikely to be cancerous. My first question to that is the Gynae Surgeon told me he suspected I had Endometriosis so how can he be sure about my womb.
I have another CT scan booked for the 27th June and the results to be reported back to me on the 5th July.
It has been a horrible week waiting for these results and that on it's own hasn't helped. It could have been worse as if this was Ovarian cancer a whole new treatment plan would have had to be discusssed so there is a plus side.
Looking forward to a weekend out of cancer land and hopefully back to work Monday. Have a good one everyone. xxx
I have another CT scan booked for the 27th June and the results to be reported back to me on the 5th July.
It has been a horrible week waiting for these results and that on it's own hasn't helped. It could have been worse as if this was Ovarian cancer a whole new treatment plan would have had to be discusssed so there is a plus side.
Looking forward to a weekend out of cancer land and hopefully back to work Monday. Have a good one everyone. xxx
Friday, 10 June 2011
Recovering nicely
at home, doing as I am told and parked in front of TV or in bed.
My operation went well and having had 4 operations in less then 2 years I was making lots of comparisons between Bristol and Taunton. I was anxious because of what happened earlier in the year when I couldn't get the help that I needed and I know this was a different department and I was soon put at ease.
Having been slightly distracted the weekend I wasn't as organised as I usually was, had no plan B for responsible adult staying over and didn't hand out telephone numbers. Thank you Tracey N for organising everything when it became clear Alice was not well enough to sleep over and Jill N you were so well behaved so you can sleepover again! And of course to the Bebbs, Nige for getting me there on time and Anne for checking me and Holly were organised and updating my blog xxx
Despite being moved to 2nd on the list I didn't get to taken down till 1pm and was in the ward from about 5pm. I was still out of it and missed telling Lesley V that I would be later then 6pm coming out. The nurses were treating me as if I was staying overnight but I was adamant I was going home. My usual post op vomiting episode was contained and after keeping down biscuits, coffee and a trip to the bathroom I was given the green light. Have no idea why Anne wouldn't believe me but the Nurse assured her and that she wanted me out! Jill picked me up and was home around 9:30pm.
Each day, despite feeling tired and my belly feeling delicate, I also feel improvement. I'm also smiling at a memory I hold when I was pregnant all those years ago, out with some friends in pub in Bromsgrove, Andrew D (AKA Plug) saying to me "Your classed as safe Totty now" :-).
My Surgeon said I was a bit of a challenge as my ovaries were quite sticky. Well they have been there a long time! He didn't phone yesterday with the results to confirm his opinion that it was Endometriosis that the CT scan had showed up. I have called today and his secretary called back to advise the test results are not available but he would call on Monday when he will be back in the office. (Friday and golf come to mind).
Have a lovely weekend everyone. Good luck for my lovely niece Laura and the rest of the Worcester peeps who are doing the Race for Life on Sunday. I will cheer you on from my sofa! For those who want to sponsor Laura, her link is on my Race for Life 2011 page and thanks in advance xxx
My operation went well and having had 4 operations in less then 2 years I was making lots of comparisons between Bristol and Taunton. I was anxious because of what happened earlier in the year when I couldn't get the help that I needed and I know this was a different department and I was soon put at ease.
Having been slightly distracted the weekend I wasn't as organised as I usually was, had no plan B for responsible adult staying over and didn't hand out telephone numbers. Thank you Tracey N for organising everything when it became clear Alice was not well enough to sleep over and Jill N you were so well behaved so you can sleepover again! And of course to the Bebbs, Nige for getting me there on time and Anne for checking me and Holly were organised and updating my blog xxx
Despite being moved to 2nd on the list I didn't get to taken down till 1pm and was in the ward from about 5pm. I was still out of it and missed telling Lesley V that I would be later then 6pm coming out. The nurses were treating me as if I was staying overnight but I was adamant I was going home. My usual post op vomiting episode was contained and after keeping down biscuits, coffee and a trip to the bathroom I was given the green light. Have no idea why Anne wouldn't believe me but the Nurse assured her and that she wanted me out! Jill picked me up and was home around 9:30pm.
Each day, despite feeling tired and my belly feeling delicate, I also feel improvement. I'm also smiling at a memory I hold when I was pregnant all those years ago, out with some friends in pub in Bromsgrove, Andrew D (AKA Plug) saying to me "Your classed as safe Totty now" :-).
My Surgeon said I was a bit of a challenge as my ovaries were quite sticky. Well they have been there a long time! He didn't phone yesterday with the results to confirm his opinion that it was Endometriosis that the CT scan had showed up. I have called today and his secretary called back to advise the test results are not available but he would call on Monday when he will be back in the office. (Friday and golf come to mind).
Have a lovely weekend everyone. Good luck for my lovely niece Laura and the rest of the Worcester peeps who are doing the Race for Life on Sunday. I will cheer you on from my sofa! For those who want to sponsor Laura, her link is on my Race for Life 2011 page and thanks in advance xxx
Tuesday, 7 June 2011
Signing in for Sue
Just a quick note to let you know Nigel dropped Sue off this morning at Musgrove ready for her op. She was there by 7.15am in plenty of time and was originally scheduled for first on the list. However as is often the case, for whatever unknown reasons, she slipped down the list as the morning wore on.
She finally managed to phone me just after 7pm sounding still somewhat groggy and as far as she could tell it had not been decided then whether she should come home the same day or be kept in overnight tonight - I think there may be some interesting discussions between her and the staff :)
Another friend will contact the ward to see if she can collect her, bring her home and stay with her overnight at around 9pm. Holly has been spending the evening with another good friend so everything on the home front is ticking over nicely
I have no real details of today's events at the hospital except to say she has come through the op ok
No doubt there will be more info forthcoming in the morning from the horse's mouth so to speak but I'm sure that she's heartened by everyone's good wishes
Anne (on Sue's behalf)
PS -
Just spoken to Sue again at 8.50pm and after having half a cup of tea, some toast and a toilet visit they have now told her she can come home so Jill is heading off to collect her as I type.
I must admit that as the ward had just asked Jill to ring back at 10.30pm to see if she could leave I did insist on checking with the nurse as I know Sue can be a bit of an escapologist but it is all legit and she's en route having been assured by the medics that they have managed to remove everything they went in for.
Of course the main challenge now begins - convincing her to rest and recuperate!!!
She finally managed to phone me just after 7pm sounding still somewhat groggy and as far as she could tell it had not been decided then whether she should come home the same day or be kept in overnight tonight - I think there may be some interesting discussions between her and the staff :)
Another friend will contact the ward to see if she can collect her, bring her home and stay with her overnight at around 9pm. Holly has been spending the evening with another good friend so everything on the home front is ticking over nicely
I have no real details of today's events at the hospital except to say she has come through the op ok
No doubt there will be more info forthcoming in the morning from the horse's mouth so to speak but I'm sure that she's heartened by everyone's good wishes
Anne (on Sue's behalf)
PS -
Just spoken to Sue again at 8.50pm and after having half a cup of tea, some toast and a toilet visit they have now told her she can come home so Jill is heading off to collect her as I type.
I must admit that as the ward had just asked Jill to ring back at 10.30pm to see if she could leave I did insist on checking with the nurse as I know Sue can be a bit of an escapologist but it is all legit and she's en route having been assured by the medics that they have managed to remove everything they went in for.
Of course the main challenge now begins - convincing her to rest and recuperate!!!
Monday, 6 June 2011
Twas the night before my Oophorectomy and my check list all ticked
Nige B taking me to hospital for 7:30am. OK I will be ready for 7am :-(
Lesley V my friend who works on site is bringing me home. iPod charged and book chosen. Alice G staying with Holly and myself Tuesday evening. Chinese order made for tea :-) Up todate with jobs at home. Have got some TV to catch up on as well as a couple of books I want to read. There is no excuse I will rest.!!
Lesley V my friend who works on site is bringing me home. iPod charged and book chosen. Alice G staying with Holly and myself Tuesday evening. Chinese order made for tea :-) Up todate with jobs at home. Have got some TV to catch up on as well as a couple of books I want to read. There is no excuse I will rest.!!
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