tag:blogger.com,1999:blog-78554840103327741052024-02-19T07:20:37.133+00:00Just to let you know...Hi and Welcome to Sue's World. I started this blog to keep family and friends informed after being diagnosed with Breast Cancer in February 2009. In March 2011 I was diagnosed with Secondary Breast Cancer. This is about my treatment and how things are going, but mainly to keep them amused with the silly little things that happen to me!!! Read on with interest and please feel free to make any comments, serious or fun, it all helps!!!
Sue xxRachelhttp://www.blogger.com/profile/17161941646423594541noreply@blogger.comBlogger150125tag:blogger.com,1999:blog-7855484010332774105.post-49538732138936221802013-06-14T07:00:00.004+01:002013-06-14T14:59:16.838+01:00Sue<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">There is no easy way to put this.....</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Sue passed away earlier this morning in the Beacon Centre, Taunton</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Her sister Rachel was with her as she peacefully slipped into the next world and the loving arms of those members of her family who had gone before her</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">As you would expect her room has had a procession of visitors, young and not so young over this week and the staff have been magnificent, showing compassion for both Sue and all around her in bucketloads</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Now she is free of all the limitations of her condition to be Sue again</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">The sun ought to get it's act together today as there is one new star up there shining so brightly we will all need our sunglasses</span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #e06666; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">God bless you Sue xxx</span>Anonymoushttp://www.blogger.com/profile/08352283065863856112noreply@blogger.com10tag:blogger.com,1999:blog-7855484010332774105.post-15211757562758203432013-06-11T00:12:00.003+01:002013-06-11T00:12:49.217+01:00Latest on Sue<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">As she told you herself Sue had the second lot of ascites fluid drained a couple of weeks ago</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">Unfortunately after she returned from hospital on the Wednesday she started to become quite unwell - lots of vomiting which the GP seemed unable to control with anti-emetics</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">Eventually we managed to persuade her, much against her better judgement, to go to A and E on the Sunday where she was kept in</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">To cut a long story short the vomiting was as a result of her kidney stent failing and subsequent high levels of calcium in her blood</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">Eventually she was moved to the Beacon ward last Tuesday and since then she has deteriorated gradually as her kidneys and liver functions have reduced</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">Yesterday her oncologist told her family that there was little else they could do except palliative care</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">She is still on the Beacon ward and is being looked after by their wonderful staff</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">I have seen her this evening and she is comfortable but I am unsure if she is aware who is around her. As you would expect she has had lots of visitors. The staff feel that she will not be with us for that much longer but it is impossible to quantify this as she is still relatively young and was quite fit before this latest episode so it could be hours or several days</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">Before she drifted into this gentle state of resting and sleeping we have had some lovely 'Sue' moments and she has also tried to 'escape' several times much to the consternation of the staff</span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="color: purple; font-family: Arial, Helvetica, sans-serif;">So please join us in smiling at these thoughts and hold her in your heart for as long as she's still with us</span>Anonymoushttp://www.blogger.com/profile/08352283065863856112noreply@blogger.com9tag:blogger.com,1999:blog-7855484010332774105.post-47349150698541775952013-06-09T11:51:00.001+01:002013-06-09T11:51:24.332+01:00UpdateWe realise a lot of you will have been wondering how Sue is doing so this is a very quick update<br />
<br />
She is still in hospital and is really pretty poorly<br />
<br />
We have made sure that we have passed all of your messages of love and support onto her<br />
<br />
We will update the blog as soon as we are able to<br />
<br />
Thanks to everyone for their good wishes <br />
<br />
Anne and Lynne xxxAnonymoushttp://www.blogger.com/profile/08352283065863856112noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-20674913784195574072013-06-03T22:20:00.001+01:002013-06-03T22:20:44.828+01:00Breaking News......
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">As Sue is currently in hospital
here is a message from her friend Lynne:<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><o:p><span style="font-family: Calibri;"> </span></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">“Well as some of you already
know Sue has been re-admitted to Musgrove Park Hospital. <o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">Yesterday afternoon, after 4 days of struggling to
keep fluids down and getting very dehydrated, we as a group of friends, talked
Sue into thinking it was the best decision to go and get everything checked
out. <o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">After a very uncomfortable 4
hours in A&E, Sue was reluctantly admitted to her nemesis ward - Medical Assessment Unit. <span style="mso-spacerun: yes;"> </span>Unfortunately MAU is a very busy ward, very
noisy and not a good place to be for the sleep deprived.<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">Blood tests confirmed the
dehydration and also a high blood calcium which needed to be treated urgently. <span style="mso-spacerun: yes;"> </span>The high calcium levels were causing the
nausea and vomiting as well as making Sue feel very weak and quite confused. <span style="mso-spacerun: yes;"> </span>Also the dryness in the mouth had brought on
another bout of oral thrush that was picked up by the consultant who came to
see her on MAU.<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">After much persistence from Sue
and an emotional phone call, the staff on MAU managed to get Sue moved to Ward
9 which specialises in treating oncology and haematology patients, and although
she wasn't treated to the single (party) room like her last visit to that ward
it is certainly much quieter than MAU.<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">Sue said she had a terrible
night with lots of pains in her arms but that was also due to the calcium
levels.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">The plan of action for today was
to rehydrate as far as possible without causing the oedema to return.<span style="mso-spacerun: yes;"> </span>This would hopefully bring down the calcium
levels and improve all symptoms. <span style="mso-spacerun: yes;"> </span>During
the afternoon Sue had an ultrasound scan of her kidneys and abdomen just to see
that the stents fitted at Christmas were working properly.<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;">
<span style="color: #333333;"><span style="font-family: Calibri;">Good news is that following
rehydration Sue has become more coherent and less confused and is looking a bit
brighter.<span style="mso-spacerun: yes;"> </span>I've just heard she's been
moved to the Beacon Inpatient Ward (specialist oncology unit) which will please
her no end.<o:p></o:p></span></span></div>
<span style="color: #333333; font-family: "Calibri","sans-serif"; line-height: 115%; mso-ansi-language: EN-GB; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">The plan when Sue is
discharged is to get a sensible care package organised which will give Sue some
independence and allow her to stay at home as much as possible and help Holly
with the caring whilst making sure Sue is looked after properly.”</span>Anonymoushttp://www.blogger.com/profile/08352283065863856112noreply@blogger.com6tag:blogger.com,1999:blog-7855484010332774105.post-63337676850791507772013-05-14T16:24:00.000+01:002013-05-14T16:24:34.490+01:00Reports confirmed some good and not so good news...<span style="font-family: Arial, Helvetica, sans-serif;">The good news is the largest tumours in my liver have reduced in size. There appears to be moderate amount of fluid in my left kidney, which we didn't discuss so will pick that up on my next appointment. Overall statement - Stable and No significant change.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Not so good news is the Acities which I was expecting "suggests progressive peritoneal disease". I know the fluid was increasing because although I haven't put on any weight, the increasing size of my belly despite using natural diuretics, is quite obvious. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">More not so good news was that my liver functions have deteriorated again.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Moving forward the plan is - Not to take any Mistletoe Therapy, continue with my Chlorella, Spirulina and Astragalus (herbal remedies) and check my bloods in 3 weeks time. Hopefully the improvement trend will be reinstated and I can start Chemo. Despite the tumours in my liver not increasing in size, chemo is needed to reduce the Acities activity. Arrangements are in place to have the Acities drained again and send off a sample of fluid for testing. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Despite the mixed bag here I feel pretty confident that this is all manageable. Even a few cycles of Capcitabin doesn't seem too bad. Gives me a chance to source some more herbal remedies :-)</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Next appointment is 4th June which will fly by as the last 3 weeks have done. I hope we can have some more sun in the meantime so we can all top up on some much needed Vitamin D! xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com1tag:blogger.com,1999:blog-7855484010332774105.post-7535310536728159102013-04-23T19:12:00.002+01:002013-04-23T19:12:04.156+01:00Bloods still improving Whoop Whoop !!<span style="font-family: Arial, Helvetica, sans-serif;">My Bilirubin has dropped 4 points to 20 and is just 3 points off being back in range. The Albumin has increased by 2 and is 2 points off being back in range and the Alkaline Phosphatase has dropped by 33 and is 119 points off being back in range. The interesting thing is that this is all being done without any conventional or Homeopathic drugs :-)</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"> </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My Potassium level is back in range for the first time since 11th March. Again no Drugs, increased it with a combination of foods and drinks rich in Potassium and Magnesium.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"> </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Annoyingly the Acities has returned. Initially I was putting on 1lb a day which was worrying as I thought I would be back in hospital by now with another drain or even having a permanent one fitted. However I have managed to halt the increase by eating and drinking natural diuretics and have even lost 1lb in weight. I am able to cope with the symptoms so far and hoping that I can reduce the fluid collection naturally to avoid another drain. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"> </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Discussing the cause of the Acities my oncologist advised it is a symptom of active cancer cells in the Peritoneal cavity where the Liver sits in. These cancer cells are unlikely to show up on a CT Scan as they are tiny, however the chemotherapy, should it work, will also reduce the fluid by killing off the cancer cells. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My CT Scan is booked for the 3rd May and my next Oncology appointment is the 14th May where I will have the results. Meanwhile I am going to start my Homeopathy medicines and see what the impact of them will be on my bloods and Acities :-) </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">All in all I feel very positive!!</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-50536226234977811202013-04-09T18:37:00.000+01:002013-04-09T18:40:35.416+01:00Quick update - A fantastic week all round...<span style="font-family: Arial, Helvetica, sans-serif;">I have had my <a href="http://www.patient.co.uk/doctor/ascites" target="_blank">Acities</a> </span><span style="font-family: Arial, Helvetica, sans-serif;">dealt with last Thursday. Over 5.5 litres of fluid drained loosing over a stone in weight. I can breath easier and my mobility has improved and I feel better than I have in a long time. Just getting my appetite back and build up my strength . </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I had clinic today which delivered more good news as my liver functions have all improved !!! Despite having Local Anesthetic, pain killers and anti sickness drugs when I had my Acities fluid drained and having a 24 hour vomiting bug. We agreed that my body has just had so much to deal with and is now starting to get back to normal.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">This means I am going to give Capecitabine another go in 2 weeks time starting with lower dosage to see what the side effects are going to be like. The success of this will be measured by a having a CT Scan when I start and one more probably after 3 months like last time to look for reduction in the tumours. Also I will have blood tests every 3 weeks. My oncologist did reiterate that just because it worked a year ago doesn't always mean that it will work again and I assured her I understand that risk but I am going to combine this with the homeopathy drugs as well. Keeping my fingers and toes crossed...</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I am seeing a light and normality at the end of the tunnel and feel I can even start thinking about escaping back to work xx.</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com1tag:blogger.com,1999:blog-7855484010332774105.post-80189807799152337842013-03-26T16:33:00.001+00:002013-03-26T16:34:03.591+00:00Another positive difference in a week!<span style="font-family: Arial, Helvetica, sans-serif;">I had correctly guessed my bloods would have improved as 2 of the symptoms have improved and I felt my energy level increase. Shame you cannot prescribe weekends away with friends!</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My kidney functions are all normal and my LFTs have shown improvement in 3 with the 4th moving by 1 point in the wrong direction. My potassium level still dropping along with my HB. During the most positive Oncology meeting I have had all year, the following plan has been agreed.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">1. A referral to Liver specialist to understand why my Liver functions have deteriorate as the 2 largest tumours would not be the cause. Liver being such a large organ should be able to cope with them.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">2. Stop all medicines for 2 weeks to see if there is even more improvement. I have agreed to stop the Homeopathy and herbs and keep a foood diary! We looked at the LFTs over the last 2 years and can see the deterioration started mid 2011. Yes I had all the graphs with me and I will have a look and see what I was taking.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">3. A referral to have the fluid that has collected in my belly drained. This will improve mobility and appetite. Dr examined me and confirmed I have Ascities. I just thought it was the left over fluid from being drip fed it me when I was in hospital. I had stopped taking the water tablets last week as Dr called to say my potassium was low and I know they impact the potassium levels.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">4. Review bloods in a fortnights time and if there is sufficient improvement in the Liver functions then I can start Capecetabin. I may need another blood transfusion if the HB levels don't improve.</span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">What a huge difference a different oncologist makes. Thinking outside the box, being spoken to as a person not a number. I was even asked how my daughter was coping with everything. We discussed possible causes of the reduced liver functions and the last scan results. What is involved with the Acities and what happens to get it drained. It involves local anethestetic and a night in hospital. Umm drugs that will impact my liver functions....</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I am still angry at last weeks episode with Dr D&G and her advise has been contradicted today by someone who I know and trust from being my oncologist in 2009.</span><br />
<br />
<span style="font-family: Arial;">Heres to more Orange Juice, Fruit Teas and fun xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-47275683067558773982013-03-19T18:27:00.000+00:002013-03-19T18:27:58.924+00:00An eventful afternoon in Clinic!!!<span style="font-family: Arial, Helvetica, sans-serif;">Arrived at the Beacon Centre had bloods taken and waited to be called in. Thankfully time flew as Debbs was with me and before we knew we were all sat in the consultant room. I was asked how I'd been and I told them my concerns. Then the consultant, using last weeks blood test results, continued including giving me another less toxic chemo option. I was then asked to come back in two weeks so that a treatment plan can be agreed and asked if I wanted a referral to our local hospice for symptom management. This all based on a week old blood tests. I confirmed I was not leaving without my test results which was discouraged but I stood my ground and went to the waiting room. Then I realised I didn't know what to do as the Consultant and nurse would be seeing the next patient. Bordering hysterical I called my GP and the duty Dr agreed to look out for them and ring me. This gave me chance to calm down and by that time I had found out the results were in and asked reception to get a Dr to print them out.</span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">Lynne arrived at this point and tried to establish what had happened. The nurse then came out with the results and it painted a different picture to last weeks!!!! Still out of range but improvement in 3 out of the 4 LFTs including the Bilirubin. Lynne took charge and asked to continue talking to the nurse and got her to get us a room. She then cleared up all the issues including a change in my consultant, brought the next appt forward by a week, I agreed to the hospice referral for symptom management. Result. Thanks Lynne I feel extremely lucky. I feel much calmer now and it was certainly the right thing to do. The consultation should have never taken place without the current blood tests. Not that much has changed but it brought positivity to the table.</span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">Feeling exhausted now and Alice is cooking me chili for dinner so signing off....</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-23038934888017716012013-03-13T12:25:00.003+00:002013-03-13T12:25:57.876+00:00Am home at last <span style="font-family: Arial, Helvetica, sans-serif;">and resting. Just got to keep an eye on the fluid retention however it is lovely being home. My hair is now all shaved off thank you Anne, and the search for the hats and scarves back on. Trust this to happen when it turns cold and I gave my beanie hats way. Never mind opportunity to buy more and it wont be needed for long.</span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">Pre - assessment next Tuesday but till then rest and recovery and think about the questions I have for treatment options open to me. </span><br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">Holly on school trip til Friday so it is feet up with some exercise... uummm feel an online shop happening xxx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-41606487409711148702013-03-11T19:35:00.001+00:002013-03-11T19:40:23.309+00:00It gets better<span style="font-family: Arial, Helvetica, sans-serif;">Well catheter came out today and I went for a short walk afterwards to the cash point and Lesley P brought me back in the wheel chair but is was a good start thank you lovely!!!!</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My creatinine levels have come down by another 20 points. I am carrying fluid but have turned down the magic pills as I don't want this to affect my kidney function but will have to monitor it. </span><span style="font-family: Arial, Helvetica, sans-serif;">I hope to be discharged tomorrow with 7days of antibiotics as a small UTI infection is being checked out and I'm happy with that. </span><span style="font-family: Arial, Helvetica, sans-serif;">I also have to do something with my hair as it has fallen out again so I will have to grab the scarfs and hats out and hope to sport a spiky look before the Judi Dench look comes back :-)</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span style="font-family: Arial, Helvetica, sans-serif;">Options for the next steps are being discussed and I have lots of options to explore and will post that when I have made them. The good news for now is that recovery is good and going home tomorrow.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span style="font-family: Arial, Helvetica, sans-serif;">A huge thank you to everyone including Thandi. As you know I have continued with plans as a well person but having plan b's as well. This weekend Holly and I were going to Bournemouth to see Olly Murs at the Bournemouth International Centre and stay the weekend in a lovely 4 star hotel booked through Laterooms. I have to say they have all been brilliant. With the bookings being the last thing on my mind except ensure the Olly Tickets went to a good home with as little fuss as possible. The hotel phoned Friday to check what my arrival time was and I acknowledged they were my next call and apologised but would hope to transfer to another day but not in a position to discuss it at moment and explained what happened. They sorted every thing out and got in touch with Laterooms who have confirmed today they are going to let me have my booking at another date to suit me without extra charge for the same hotel. Wonderful news and I am so grateful for the stress took away from me by the hotel. Big brownie points to both of them. Then the BIC came up trumps as well. My lovely friends Elaine and Tanita were both free and able to go to the concert and I was able to let them have the tickets and the BIC were very helpful and made this secure but a painless exercise. I am so glad you both enjoyed the evening and the tickets went to a good home. I'll get to see him at some point :-(</span><br />
<span style="font-family: Arial;">Thats all for now. All good and going in the right direction. Going home tomorrow with managable side effects and rest. Thanks for everyones thoughts and wishes it all helps xxxx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-91162088299820410432013-03-10T14:52:00.001+00:002013-03-10T14:52:36.223+00:00Fab test results are in which have made my day...<span style="font-family: Arial, Helvetica, sans-serif;">Restful night, nurse came in. And informed me of results and Shushhh.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">LFTs -Bilirubin shot up to from to 34 to 127 now down to 80 need to get to 17.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Kidneys - just waiting for creatinine levels to return from down to 184 and need to be under 120.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Potassium and Magnesium bank in range.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">CA 153 tumour markers are now down to 122.6 need to get to 34.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My WBC is now back in range too so no longer neutrophenic</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Although i am loosing fluid at a better rate, catheter is staying to monitor my kidney functions in particular my creatinine level.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My leg swelling will improve with rest and better urination.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Overall Result - All good news, functions improving in the right direction, symptoms improving and relaxing will also help. Will be having another blood test shortly. Just waiting for a vein to come out to play</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Thank you everyone for your messages of support and good wishes. Apologies for no personal replies but as you can imagine I have been inundated however it all helps. Holly's care is all sorted for next week keeping up normality as much as possible which is what she wants. I feel more informed therefore more in control. We cannot talk about next options until the kidneys are working properly which is what is being closely monitored. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I am being moved to the Beacon centre this afternoon as I come under Oncology. Nothing to do with the private party I had last night.....</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Lots of love and best wishes to you with a huge thank you xxxx</span><br />
<br />Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com1tag:blogger.com,1999:blog-7855484010332774105.post-30345653824882785042013-03-08T17:50:00.001+00:002013-03-08T17:50:33.437+00:00A quick update for youAfter Saturday and Sunday spent mostly on the sofa, in a lot of pain , attempt at work on Tuesday but leaving work early and the start of being sick on Wednesday phoned duty GP and the Beacon centre on Wednesday it was decided with dehydration and white blood count on Thursday it was deemed necessary to admit me to Hospital on Thursday. <br />
I was hooked up to antibiotics and cayline straightaway further tests were completed. I was Neutropenic - low white blood count and dehydrated. Tests I conformed I had no infection but kept overnight for the other. I am not passing out enough water water now either.<br />
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I am needed to stay in to rehydrate me and increase my white blood count and reduce the jaundice which accompanies all that.<br />
There are other options to consider as well with the impact the chemo has had on me sand I will update my blog when I understand them as my liver functions, surprise surprise,have been impaired which will be prioritised and disscussed.<br />
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Plan B for Holly is in action. We have all had a bit of a shock. However I am in the right place and should be hear for about 5 days.<br />
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Thanks for all the good wishes but this is all for nowxxxxSue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-72646352462346384102013-03-03T11:03:00.000+00:002013-03-03T11:03:03.401+00:00A big Whoop Whoop and another winge...However the Whoop Whoop is fantastic! This has made up for the 3 attempts to get canulated on Friday for my blood transfusion and that is my blood results from Monday before I started chemo, showed a good improvement in the the right direction and my LFTs and my Tumour Marker. It is just my Bilirubin level hasn't changed which I need to reduce. I didn't care, I was ecstatic as you can imagine as this has given me the confidence in the homeopathy drugs I have been prescribed and ones I have self prescribed. Big Whoop Whoop!!! Just need to bring down my Blirubin and have been shopping for Echinacea tea, beetroot juice and already using honey and lemon. The problem I face is having enough time to drink it!!<br />
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The down side is the side effects of Monday's chemo has kicked in starting with mouth ulcers. A quick scour of the intranet showed Coconut oil and Chamomile will help. Appetite gone and reminds me of how I felt in 2009 when I had 8 cycles. Have got in snacks for energy and more Complan.<br />
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The whoop whoop more then makes up for this (I am still trying to convince myself) as my confidence is booming particularly after the last 2 weeks.. I have put a call into the Penny Brhon centre to speak to a dietitian to see what else they can suggest to bring my Bilirubin levels down. Answers on a post card please .....<br />
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Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-50425200976689325122013-02-25T22:29:00.002+00:002013-02-25T22:29:53.153+00:001st round of chemo started today<span style="font-family: Arial, Helvetica, sans-serif;">which nearly never happened as I hadnt' picked up a voice message on my land line Thursday until Saturday. There had been no follow up call on my mobile either. With last Monday's Oncology appointment leaving me feel morose and angry and then also on Saturday, I had a copy letter of one sent to my G.P. with inaccurate information in it didn't cheer me up! The impromptu late lunch on Holly and I had on Saturday with Lynne, James, Amy, Libby, Ali and Harry did though. :-)</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">A quick phone call this morning confirmed the message I had picked up was for my Chemotherapy appointment and they were going to offer me the 9am slot today! As I was working on site today I was able to take it and it was still available - result! The Cannula didn't hurt much and the nurse took blood required for a bench mark test from it was well - another result! The actual drug infusion only takes 5 minutes but it was all the paperwork and waiting that took the time as this was my first course of the drug. Eribulin will be given to me on day 1 and 8 of a 21 day cycle and I am earmarked for 3 cycles before reassessing with another CT scan to see if this is working.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">My bloods came back with my LFTs showing some improvement, 1 test by a third , 2nd by half but no movement on my Bilirubin levels. My Hb is now below 10 so I have been booked in for a blood transfusion on Friday and my potassium level is low - yep eat more banana's.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Mixed bag really, feeling less angry after firing off a couple of emails. So far no side effects but have to take steroids for 2 days. Not sure what to do with the homeopathic meds. I get the " lets keep things simple for my liver" but no one has confirmed any contra interactions and I really want to have a natural approach to help remove toxins from my body and manage the side effects.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">March is almost here and have some lovely weekends lined up creating more lovely memories :-) Bring it all on !!!</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-58097331985117956252013-02-15T13:24:00.000+00:002013-02-15T13:24:20.314+00:00Well that went better than I thought...<span style="font-family: Arial, Helvetica, sans-serif;">I had prepared myself for the worst so I came out feeling quite chipper. My kidney functions are all back in range and the stents are working as there is no fluid collection. My liver functions are still out of range and creeping in the wrong direction along with my Tumour markers. However they are only creeping. There is mild enlargement of the lesions in my Liver and new ones noted, since my December scan.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">So my options are, Chemo, Letrozel or stick with the Homeopathy treatment. I was chuffed they were offering me chemo, not convinced about Letrozel as none of the other </span><a href="http://en.wikipedia.org/wiki/Aromatase_inhibitor" target="_blank"><span style="font-family: Arial, Helvetica, sans-serif;">Aromatase Inhibitor's</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> had worked but my new Oncologist pointed out that I had taken a months supply since my last scan and the progression has been mild suggesting that this was still a viable option. I would feel more confident about taking homeopathy treatment if I was being treated locally but happy to once we have reversed the cancer growth. The Chemo they want me to try is Eribulin and I need to do more research on this. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I know I will go for the Chemo option whilst I am well enough to handle it and it is still an option. I have been told to go away and think about it for a week then I will let my Oncologist my decision.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">On another bright note we have finalised the Charity Ball account and sent it off to the Penny Brohn Centre who have issued the certificate as below. Thank you everyone that turned up to make this the success that it was as this would not have happened without you or without the phenomenal committee for making it happen. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Have a good weekend everyone xxx</span><br />
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Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-49577326786869420872013-02-05T21:01:00.000+00:002013-02-05T21:01:55.491+00:00Glad January is over<span style="font-family: Arial, Helvetica, sans-serif;">What a rubbish month it's been for people I know of and or care about loosing their fight with cancer. I have to mention the lovely Timms family from Brackley. We were so relieved the snow stopped allowing Holly and I to be with you all for the day. It was a lovely, wonderful funeral and wake and may Margaret RIP but alive in our memories.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">As if I needed any more reminding about how fickle cancer can be, ignoring my swelling face, weight gain and generally feeling worse then I had for a while, I was finally persuaded last week to get to the Dr's. Within 3 hours and after a couple of phone calls I was admitted to MAU and have got say the experience there was improved since my last visit in 2009. I did laugh when the Dr phoned me at work to say she had been been in touch with the Oncology team and then "Your not going to like this but ..."</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Within hour and half, all the tests, examinations and xrays and been done it was a case of waiting for the results (This is when I wish I had shaved my legs ). The Secondary Breast Care nurse came up after clinic and said I was not to leave until a CT scan and MRI had taken place. When the Dr and consultant went through the results with me, we agreed that realistically I was not going to get scanned as it was gone 4pm at this time and that they would get them booked for tomorrow. This pleased me as I had no intention of staying overnight, however the CT scan is booked for next Tuesday morning with an appointment with oncology in the afternoon. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Turns out that my liver functions, despite the improvement a fortnight before, has deteriorated and I am passing protein in my urine. It was quite frightening and had to get the plan b's into action for Holly if I was kept in. For at least 1 minute my mind went to that dark place with the words that were being thrown about and the speed it all happened at. Thankfully the clinical examinations have ruled out the dark places I went to however I will wait for the CT scan to be absolutley certain. The water tablets have worked and I have lost the weight I had gained already and my face isn't sporting the steriod look. Something else for me to research...</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">I managed to get to my Homoeopathic appointment this week as the last one was thwarted by the snow. The Dr is pleased with how I have been with the </span><a href="http://en.wikipedia.org/wiki/Mistletoe" target="_blank"><span style="font-family: Arial, Helvetica, sans-serif;">Iscador</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> (mistletoe), Carcinosin and Ignatia and has prescribed 2 more for me to help with water retention, nausea and leg cramps and will put them on here when I have found some useful resource. In addition to that my friend Tracey has pointed me in the direction of </span><a href="http://www.bio-sources.com/chlorellabenefits" target="_blank"><span style="font-family: Arial, Helvetica, sans-serif;">Chlorella</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> which I will have to get myself. He pointed out about my negative attitude with regards to next weeks scan as I told him I am expecting growth and spread as I am not taking anything heavy duty to put the brakes on the cancer cells so to speak. I only started the Homoeopathy medicines after Christmas because of my minor op. Personally I think I am being realistic and expect to start a course of chemo, which isn't going to be a problem if my body reacts like it did last year when I went on it. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Off to shave my legs as you never know.....</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-26727722713648219102012-12-29T11:08:00.003+00:002012-12-29T11:08:21.742+00:00Happy New Year everyone xxx<span style="font-family: Arial, Helvetica, sans-serif;">I had the minor op as planned. I had a daft start to the day by turning up at the wrong place and had to walk over to the other side of the hospital to get the the Day Surgery unit. I was out of breath but on time and first on the list :-) I was back on the ward for 10:15 and home in bed by 13:30pm. </span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I have started my homoeopathic treatment and back on my other holistic medicine. My anaemic symptoms are becoming less acute apart from the breathlessness which has cheered me up no end. My next onc appt is Jan 15th with my homoeopathic appt a week later. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">On Christmas Eve Eve , we managed a toast to Colin and the rest of my family upstairs and finished the day off at a local carol service. Christmas day was spent in our PJ's and I rested all day whilst Rachel Laura and Holly did the cooking. I know I can hear you - the things I do to get out of cooking the dinner!!</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">The uncomfortable feeling is not as acute but I know it's there and still being careful.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">New Years resolutions ??? Well more happy days, already have a few things lined up, improve my health, improve my mobility (umm heard that one before)... xxx. </span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-86515187449150222692012-12-20T22:02:00.001+00:002012-12-20T22:02:56.736+00:00Busy week with bloods ....<span style="font-family: Arial, Helvetica, sans-serif;">In my last post I forgot to mention the results of my brain scan. They found it and no abnormalities discovered - whoo hoo.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">My Urology appointment came through for last Friday, I went along despite suffering from a cold and could hardly keep my head up. He showed me my scan on screen, I love it when they do that, and we went through why then what's involved in having stent's fitted. Although this is only a 15 minute procedure I still have to have general anaesthetic as it involves inserting a double ended hook from the kidney to the bladder so it is insisted that this is done under general on to maximise patient comfort. After my pre op assessment I'm told there is space in the morning list for Monday 24th December. Well the advantage of this date is that Rachel will be down and can be the taxi driver and responsible adult as I need to rest up so I have accepted it. Then I get a phone call late Monday night to ask me to have my bloods done again as the anaesthetist is not happy with the coagulation. Fine I'm on site Tuesday so it is easier for me to pop in and get it done. I leave them my ext no to tell me what the results are like when they come in and I'm told to call back lunch time the following day ummm. However I do as I am asked and phoned them back at 12pm only to be told to come in again as they didn't collect enough blood. I was seen very quickly but my tears of anger flowed when I sat down to have blood taken again. The nurse kindly took the sample to the lab, i declined as my energy levels are low, and she phoned me with the result but couldn't say what decision the anaesthetist will make. I phoned up today and apparently they will look at them tomorrow and I will get a call if they have any concerns and if I don't hear from them I'm to assume all ok and turn up to the ward at 8am Monday. Umm will let you know when I do.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">As I can feel my energy levels dropping and getting a bit like I was before I had the blood transfusion but without the vomiting, I asked Dr Davis whoops Dr Benton, why it would happen again so quickly, yes I can see me being booked in for another blood transfusion at some point, and it all makes sense. Normal red bloods cells ok. I have a lot of under performing red cells as the liver functions are reduced. At some point these cells take on the appearance of Target cells which are removed by the spleen even though they are working but not at full steam. Lynn correct me if I am wrong. I can't have chemo which we know works, as my swollen kidney won't work properly with the extra pressure that will bring. The stent's will help when they have been inserted. Bit of a vicious circle. My homoepathic prescription came through but I can't start that as I need to stop taking them a week before my planned op.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">That's the boring stuff done. Marrakesh was fantastic. Our Riad was awesome and we were only a 20 minute walk for a healthy person to get to the main square. Thank you Jo for the organising the stay there and despite my reservations after visiting the ports of Tangier and Casablanca I was really impressed and I would recommend it for a place to go.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">A Christmas weekend with Gail Jennifer and Lennon where my plan B came into play as I really wasn't feeling well and I went back to bed and Gail sorted the tea out and I had a stew in the slow cooker for the Sunday. Lovely weekend guys thanks for coming!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">I will do a small post if I hear that the planned op doesn't go ahead so bye for now xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-89152443479880971032012-11-27T19:59:00.004+00:002012-11-27T20:07:20.246+00:00Scan reports back given new treatment plan today<span style="font-family: Arial, Helvetica, sans-serif;">As I have not been able to have chemo, and only just started back on my Homoeopathic remedies it was no surprise to learn that there has been growth and progression with the disease in my liver and swelling in my kidneys and a first increase with the swelling in my bones. Reading my report tonight I have more questions that I will have to go back with but have enough to go on for the moment. Despite this my blood picture confirms my liver functions have improved, my creatinine levels are now normal but my tumour markers are still out of range. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Today's outcome is that my kidney functions not be able to manage the work needed when on Chemo so we have a change of plan. I am having an appointment with a Urologist to look at having a stent to drain the kidneys. This should also show whether the swelling includes disease as well as just fluid. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Due to the cancer progression I am being put on a course of 8 weeks of </span><a href="http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Hormonaltherapies/Individualhormonaltherapies/Letrozole.aspx" target="_blank"><span style="font-family: Arial, Helvetica, sans-serif;">Letrozole</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> which is another Aromatase inhibitor like the Tamoxifen and Arimidex I had previously. I have not read the bumph yet but the idea is to stop the oestrogen feeding the cancer. I also have to be weaned off the steroids.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Well I have my work cut out for me at the moment looking the more natural remedies to assist. I have a very timely appointment tomorrow with the BRI Homoeopathic team which I am very excited about.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Now onto more exciting things. I have had a lovely but busy time of late including Balls, birthday and birthday treats and weddings - Congratulations Claire and Kev! I am smiling on the beautiful memories made over the last month. As I am feeling better and more in control I have been planning and getting prepared - Marrakesh with the gang next week, feeling confident about it now and doc advised today about the flight as I have everything else covered - Sorted out Christmas and New year plans and even booked next years family holiday in Croyde. Few more bits to plan (including plan b's) as well but feel so much better and looking forward to creating more fabulous memories xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-75548212209392815632012-11-14T21:36:00.000+00:002012-11-14T21:36:55.646+00:00What a night to remember - THANK YOU...<span style="font-family: Arial, Helvetica, sans-serif;">To everyone that came and made it the night it was. Early indications are that we raised around £1500 for the Penny Brohn Cancer Centre. Money has also been coming in from friends who couldn't make the evening but still wanted to help. If this is something you feel you want to do just email </span><a href="mailto:scccbash@gmail.com"><span style="font-family: Arial, Helvetica, sans-serif;">scccbash@gmail.com</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> for the bank details and this will go straight into the charity account</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span style="font-family: Arial, Helvetica, sans-serif;">THANKS to the people and organisations who kindly donated to the raffle , credits are listed in the leaflet which I will publish when the Bentons get back from holiday next week.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span style="font-family: Arial, Helvetica, sans-serif;">It hadn't dawned on me , with being busy being ill and delaying my own jobs, how much work had gone into with the arrangements until I turned up to help decorate the room. I know I am blessed with the amazing friends around me but I felt embarrassed by the committee team effort that went into things that I hadn't even thought of to make the evening the success it was. I think I managed to get to speak to most people and there have been a lot of compliments and photos flying around hailing the enjoyment. I was happy people came and we had a fab night but stunned with the fund raising on top of it all. Just show we know how we like to party.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span style="font-family: Arial, Helvetica, sans-serif;">I did do a little speech and whilst the ushers had been thanked, i.e. Holly, Clodagh and Mel, I neglected to say thank you to Holly for forming the idea from her party antics last year. So THANK YOU to Holly, I love you and didn't we have a ball! </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">ps. I know you enjoyed being on the teenagers table xxx</span></div>
Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0tag:blogger.com,1999:blog-7855484010332774105.post-1468018525194174262012-11-06T20:57:00.002+00:002012-11-06T20:57:41.135+00:00What a refreshing change at todays Oncology appointment<span style="font-family: Arial, Helvetica, sans-serif;">I was ready with "I don't want to start chemo until next week for purely selfish reasons" and "Can we not look at the cause of the vomiting instead of just treating the symptoms"</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I saw a different oncologist today, she had my chemo tablets in her hand and asked me how I'd been. Told her I was still vomiting, appetite loss but feeling better overall after the blood transfusion. I then had the reaction I was after , "Ok I think we will stall the start of your chemo and find out the cause of these symptoms, I'll arrange for an Ultra sound test of kidneys and liver, full body CT scan and a brain scan and lets see if we can find out what is going on" Eureka - at long last someone realising that this is not going away. She also asked if I minded and I owned up being the honest person that I am. She then examined me , did some tests and asked some questions. On reviewing the blood tests I was asked if I could have another blood test done to check the creatinine levels. I feel like a pin cushion after yesterdays 2 attempts to draw blood and the blood transfusion last week. Well the results are in and they want to scan my kidneys sooner rather then later. I also remember that the last 2 CT scans have reported abnormality in my right kidney and this is the first time it is being acted on. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Meanwhile I have started a course of steroids to increase my appetite and hopefully have an impact on reducing the vomiting. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Now onto the more exciting stuff. We have sold over 100 tickets for my charity ball on Saturday. Family and friends are coming from all over the UK. It goes without saying that there is a posse making their way from Worcester as well! I am so excited and grateful as I appreciate the effort people are making by coming to the event, and the work being carried out by the rest of the committee Barb, Fred Lynne and James as this wouldn't be happening without the work they are doing. Also there are a few tables of friends friends as well!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">I am also getting lovely messages from friends who are unable to make the weekend and don't worry I will try and behave myself but now I have started the steroids who knows. I just hoping these will help me stay awake past 10pm!!</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-43956315101389836782012-10-31T18:16:00.000+00:002012-10-31T18:16:32.177+00:00Feeling much better after some quality red !<span style="font-family: Arial, Helvetica, sans-serif;">Firstly a huge THANK YOU to the selfless people that donate their blood as without them this would not have been possible and I am starting to feel so much better already after 3 units of quality blood. Ironic that is Halloween!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Usual nerves leading up to getting there but I am over that now. Afterwards I thought "what was I scared about". It was a long day and after a good nights sleep I am now feeling the </span><span style="font-family: Arial, Helvetica, sans-serif;">benefits and long may it continue. It's making me realise how ill I was.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Oncology appointment next week where it will be decided if I am well enough to restart chemo on reduced dosage or start a course of steroids. ummmm...</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com3tag:blogger.com,1999:blog-7855484010332774105.post-85420999893148977022012-10-26T19:19:00.001+01:002012-10-26T19:22:18.503+01:00Blood Transfusion it is then...<span style="font-family: Arial, Helvetica, sans-serif;">Got an appointment to see my Oncologist Tuesday. My liver functions have made a slight improvement but my Haemoglobin is low. This would explain my breathlessness and tiredness. He said at this level I would be offering you a Blood Transfusion to which I shook my head. I'm not eating properly which isn't helping and I keep feeling and being sick. He doesn't seem convinced this is entirely from chemo but has agreed to lower the dosage. Admittidly I had to remind them of my personal circumstances and that it is not ok for that to happen again. I am meeting him again in a fortnight's time and hopefully I will feel better and can start the chemo cycle at the new dosage. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">As I had to call the Dr's to discuss changing my anti sickness tablets, we also discussed my fears of a having a blood transfusion. I said I was going to try and eat more and drink orange juice to boost it up. The Dr told me that was great but in reality a well person would take around a fortnight to boost the HgB with food and I wasn't in that category. I couldn't argue with that. After giving it more thought and speaking to Lynne I was warming to the idea. It was only when talking to Anne later on in the evening that I realised that what I was scared of was dialysis not a transfusion. Anne kindly explained the process without laughing too much at me. Next day got on to my health care team and I am booked in on Monday. My blood grouping and cross matching have been done on my insistence and hopefully shouldn't be there all day.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Sadly, I have again had to change my plans for the weekend. With being ill randomly it's not fair on me or my friends so again I am staying put.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Onto exciting stuff now. The ball is only 2 weeks away. Don't worry I will probably be dancing all night after Monday! Ok maybe that is a bit ambitious. I am so excited now as the sale of the tickets have gone well and thank you to those that have bought theirs can't wait to see you and we will be in for a fun night. Bar will be open from 6:30pm. We still have capacity to sell more tickets so as it's payday weekend, if you have been dithering just get on and buy your tickets. Email </span><a href="mailto:scccbash@gmail.com"><span style="font-family: Arial, Helvetica, sans-serif;">scccbash@gmail.</span><span style="font-family: Arial, Helvetica, sans-serif;">com</span></a><span style="font-family: Arial, Helvetica, sans-serif;"> to make your payments</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Chilling this weekend again but still looking for that dress to wear at the ball... No JC it won't be a Green Basque!! Have a good weekend everyone xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com2tag:blogger.com,1999:blog-7855484010332774105.post-47073652432522604012012-10-17T20:29:00.000+01:002012-10-17T20:29:29.661+01:00Well that was short lived....<span style="font-family: Arial, Helvetica, sans-serif;">2 days in and I start being ill in the mornings. Recovering, I carry on and go to work and lo and behold, Saturday, my appetite starts to diminish. Sunday it hits like an explosion and I struggled to keep my head out of the sick bucket Nothing is staying down including water. Monday I phoned up my GP and also the breast care team at the hospital who made me realise that this was chemo induced. I had already stopped taking it as I had nothing to line my stomach. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">After an injection at the Dr's that afternoon this gave me the confidence that the anti sickness tabs might work. Now it's just morning sickness and I can stomach Complan , energy bars and a spoonful of casserole.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">With this in mind though, apparently when I have got on top of the sickness the plan is to continue with the chemo at the same dosage. Personally I don't get this and still waiting for a confirmed plan. Maybe I should double dose my anti sickness tabs ??</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Some of the positive things coming out of this are that I have discovered I have a wheat intolerance and now feel tempted to make soda bread with spelt flour and non dairy butter milk. I have tested spelt and this is ok. Also in 5 weeks I have lost a stone in weight! Whoo hoo but wouldn't recommend doing it this way. </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Will keep you posted but staying close to home for the moment xx</span>Sue Davieshttp://www.blogger.com/profile/16399273303734605054noreply@blogger.com0