Operation Boob Job (pt1)!!

Ok Folks, short and sweet update for you!!

Operation has gone well, no problems and Sue is in recovery recovering!!!

I've left a message with the Staff Nurse passing on all your good wishes etc., and will hopefully get to speak to her sometime tomorrow.

Thats it for now, I'll keep you updated with any news I get.

I know Sue appreciates all your support and good wishes xx

lots of love

Rachel (and Sue)
xxxxxxxxxxxxxx

A huge THANK YOU !!

Thanks to all of you who have made the time to leave messages on my Blog, Facebook and phone. Your comments and experiences that have been shared with me have moved me to tears. I had no idea of what the impact would be of sharing my Blog with the wider audience.

Despite the wonderful support I have had, I have felt a loneliness I can’t describe. I know that I am not the only one on the planet going through this. Sharing my journey has helped eliminate those feelings to a degree. Using my sense of humour and helping other people has been enormously beneficial. Thank you to those who have shared there own experiences with me. I feel privilidged and hope that it has helped you in some way writing as it has helped me reading them.

I am so pleased knowing that my appearance on “This Morning” yesterday has encouraged so many women to check themselves (men shouldn’t be excluded from this either). Something I shall be doing when I have recovered.
Chloe – You know how scary I can be J
Penny (nee Smith) – I remember the name I even remember the house but cannot visualise you. I’m only in Taunton !!!
Angelique –. If you read my earlier post’s when I was on FEC you may find some tips. I was fortunate not to catch anything and I know having children makes that difficult. (Just started having a cough now though). If it’s ok I would also like to ask you questions about your mastectomy.
Ange – Please let me know how you get on. What’s your treatment plan?.
Hayley – I have skimmed through your blog and you are also an amazing young lady and I love the a Tee –shirt!
Jane / Janice / Sue / Kendra – Good luck and keep positive. Let me know your treatment plans are.
Donna – Let me know how you get on fingers crossed it is’nt x

Best of luck to all of us

Sue
Xxx
Suejane.davies@googlemail.com

Op countdown and what a week ahead we've got!!

Countdown started since confirmation of Op date. The 2 studies I am taking part in is as follows.
1. Quality of Life as an aid to decision making in breast reconstruction after mastectomy- filling out questionnaires pre-op, post op, follow ups and some post op Photos.
2. Trial of the effect of Tisseel on donor site seroma formation following latissimus dorsi breast reconstruction - In plain English - Tisseel is Tissue glue, Seroma is the liquid that develops after surgery which has to be drained, Latissimus dorsi is the type of reconstruction I'm having, tissue being brought from my back. This is to study the volume of seroma that is collected after the op between 2 groups. Group 1 normal finish up after surgery pipes and drains. Group 2 using Tissue glue to close the space created by surgery on my back. I won't know which group I will be in until I wake from surgery as the surgeon won't know until they open the envelope before he's starts.
Right, now for my week ahead. Back in March my sister Rachel was fed up with what was and has happened to our family with Cancer. Really not fair with Colin and myself having chemo at the same time in different parts of the country. Late one night, unable to sleep she started to write an email about it all then sent it to the This Morning (ITV) team, including the link to this blog. Forgot all about it, with everything that has been going on, until last Wednesday when she received a phone call from Ellie, a researcher on the show, who had been passed the email and had a look at my blog. She was impressed with my humour and how I'd been dealing with the chemo and everything and wanted to know if I would like to come and talk about my experience and my blog on the show. Rachel called me when I had got home from work and casually asked if I would mind talking about the last 6 months of my life to someone. Of course I wouldn't mind oh dear who else has been diagnosed ? She assured me no one we knew had been diagnosed and it would be infront of a few million people. I didn't get what she meant at all! Confused!!! (I know, doesn't take much) Then at the mention of Phil n Holly, the penny started to drop!!!. She told me about her earlier conversation with Ellie. Through both of our school girl giggles I replied I wouldn't mind at all. Rachel confirmed this had to be run by the producer first but we still kept laughing all evening. Even if this didn't happen I didn't mind as laughter is great therapy!
Thursday, I got a call as arranged from Ellie and she asked me questions about my blog and the last 6 months and asked me if I would like to come down to the studios - all expenses paid to discuss my blog with Phil and Holly. As it is Breast Cancer awareness month with Dr Chris they are doing a feature on this topic. Would I ----oh yes please !!! Would Holly like to come. No she has school and I had already made enquiries for her overnight displacement from home (Evil mom) I did re-think this yesterday and got back to Ellie and she confirmed this was still ok and school have been informed.
So Holly Rachel and myself are off to London on Monday, stay over in a lush hotel and being chauffeured to Studios Tuesday. Other guests that day are Ozzy, Joan Collins and Paloma Faith. Holly is so excited. Never mind Phil and Holly is Ozzy coming with Sharon !!!
Prior to this week my only distraction was my worry over Colin. I felt much better after seeing him last Sunday and he appears to be responding well to his 2 ops this week. Now however my last week at home is well exciting. Following on from our trip to London, Wednesday evening I am having some crystal healing, Thursday Tracie is arriving, Friday we are having a PINK Friday at work, Rachel and Laura are coming down and also going out to an evening BBQ . Saturday Kerri and Wendy are coming down so having a few beers, some lovely food and some more friends calling in as well !! Sunday I think we will go up and see the horses on Cothelstone hill weather permitting of course and chilax as have an early start on Monday!!! No time to fret and using this weekend to shop and pack for London and hospital for me (I really don't know what to wear). Outdoor school trip for Holly. Busy busy busy....

Surgery confirmed after a day at the BRI

Yesterday I had an appointment with the Breast nurse and my surgeon in Bristol to discuss my options after my scan results taken last week. Shouldn't take long i thought and as per ususal nothing turned out as I expected.
When Holly woke up crying as she hadn't slept well I took that as a sign that the day was going to be challanging. I helped her calm down and even took her and her friend to school as her friend had phoned asking if she could get there early.
Driving to Bristol was non eventful, made a mental note to check Fearne Cottons on line black book of dating rules (you never know). I saw that where I could park free all day was now barriered with road works, saw the parking bay free but decided to carry on and turn around so I would be facing the right way home and of course it was all full when I drove back up leaving me no other choice then to use the NCP car park for an appointment that should take no more then 2 hours.
I get to the reception and my breast care nurse is waiting for me. What fantastic service I think. What Lorraine wanted was to say was last weeks scan results were unhelpful and if I didn't mind she had booked me in for a mammogram and ultra sound scan that morning as that department wasn't too busy shouldn't be too long and my consultant and her would wait and have our meeting afterwards. I laughed and said that was fine I hadn't got to worry about parking as in NCP but Lorraine said I shouldn't be long.
When I saw the number of women in the waiting room I didn't share her optimism and there I waited for nearly 3 hours to have 2 scans. The ultrasound scan couldn't find Cruella at all. I didn't get to see the mammogram xrays.

We ruled out a lumpectomy as we can't see anything, ruled out a wide local incision as they would have to take away one third of my breast and not guarantee that it would include Cruella and then have to have another op. So I am having a Mastectomy with an immediate reconstruction taken from the back as that has the best results for re establishing the blood supply to the moved tissue. 6 months later after the breast has settled they will tattoo a nipple and reduce my left breast to match my reconstructed breast. I have also agreed to take part in 2 studies which I will detail in another post.

Desicions made , the next available slot is October 19th. I confirmed that I can accept, then my surgeon leaves as waiting for me has made him nearly 2 hours late for his teaching lecture he was due at but stayed and waited to save me coming up to Bristol again. What can I say - Carling black label advert -

I mention to Lorraine that my feet have swollen up and on checking them she arranges for me to have a blood test whilst I am there. It is 3.30pm before I leave making it a 4 hour visit. When I process my car park ticket and machine confirms £10 please, my eyes start to water so I start to laugh at it all and make my way home...

Chemo R8 D13 Meeting with Nurse Specialist

I still have tingling in my feet and fingers, dry throat and my eyes have started to water. My appetite is not great but finding it's way back. My bum doesn't hurt and that makes a huge difference. Not sure whether it is the knowledge that I have no more chemo but despite all this I feel really great.

I managed a boiled egg with toast and fruit salad for breakfast before making my way to Bristol to meet with my nurse specialist Lorraine. We chatted for a bit before she went through post surgery bra and clothes options and what I would need in hospital. Went through photos of my consultant surgeons work and methods he uses. Some of the pitfalls and post surgery care. I have also been asked if I would like to take part in 2 studies and have the literature to read this week to help me decide.

As for my operation we cannot decide which / how mine will be done until the results of tomorrow's scan has been discussed at their MDT meeting next Wednesday. My appointment is the same day and after today's meeting we are 95% certain I should be able to make a decision and get a surgery date for a few weeks later.

I am getting stronger every day now and looking forward to going into work as well. Having a shopping spree with Holly this weekend and a weekend in Burnahm on Sea with Jennifer and Gail next weekend providing of course I haven't been called in for surgery.....

Chemo round 8 day 9

Thanks for your helpfull comments Gill.
Have started to feel a bit better today. Stayed up this morning to watch a DVD. It has been a hard week really. My Sister in Law Sandra rushed into Hospital Sat early morning. I have never felt so useless knowing I couldn't help with anything. She is home now resting...
My energy levels dropped on Sunday so have mostly been in bed since then. Feet and fingers are very tingly still. It hurts to type or write at the moment. I am using up my complan as don't really want to eat. I started using vaseline on my lips on Sunday and this prevented a crust forming on the corner of my mouth so I feel quite chuffed about that. My tongue is starting to feel normal so will start to taste food better - yippe and yes my bum hurts again...

I had a referral to Bristol Royal Infirmary confirmed on Monday for Wednesday with a surgeon consultant. I don't know what I was thinking of saying i would be ok on the train. Thank you Kath for taking me. It was very informative and I have an appointment with a Nurse Specialist there on Tuesday to go through reconstructions, MRI scan of breast Wednesday and meeting with Surgeon to confirm available options to me on the 23rd September. I'm impressed at the speed this is moving and all i know is that whatever is left of cruella has be operated on by 2nd week in October.
Will keep you posted

Chemo Round 8 Day 1

Final round of chemo administered. Just got the nasty bit now that lasts for 14 daysish before I start to feel better. Tounge already lost it's colour so have started taking the difflam and my taste buds have changed. Already taking stuff to soften the bowel contents. Round 7 days 3 to 8 were spent mostly in bed and on the sofa so here goes..... but for the last time and I have started to take multi vits to help and in addition to the strawberry complan I now have a supply of banana and vanilla - Thanks Kerri for your contribution to this - I love you xx

Feeling a bit evil mannered at the moment. I feel exhusted and tired still which doesn't help. I have made a decision yesterday at my pre-assesment appt that I am not going to go for immediate reconstruction after my masectomy in October. This is mainly because the surgons will not be able to confirm if I will need to have radiotherapy until the standard removal of 4 lymph nodes to examine them for signs of cancerouse cells which is only done during surgery. The radiotherapy will effect the reconstructed breast and knowing my luck I will need it. The benifits will be that I will now be having a smaller operation on October giveing me a speedier recovery. I can choose to have my reconstruction done anytime after 6 months giving me time to restore my fitness levels and research and decide on the options open to me on reconstruction. Also this will all be done in Taunton. Lots of things to think about at the moment...

Chemo Round 7 Day 8

What a week. Started going downhill Sunday really so it has been bed sofa and unavoidable trip to supermarket and post office so far. I feel so tired and I appreciate it is accumulative. My bum is really sore and I am struggling with doing anything other then resting, making food, resting and getting upset about clearing up! Holly's at her dad's this week so cabin fever isn't pleasant.
I can't seem to find banana flavour complan and strawberry is getting on my nerves abit but am drinking it as my appetite isn't great. Had a bit of a turn on Wednesday morning, came over all cold and sweaty and had to lie down. When I felt confident in standing up it was check I had turned off cooker as I had been making my porridge, unlock front door, grab phone and blue book with phone numbers and thermometer, in that order. During this time my sister in law Sandy called and I burst into tears. I would have thought that by round 7 I shouldn't experience new side effects and feeling vunerable was quite shaken by it. I phoned the Beacon Centre (our local cancer day unit) to share this new experience with them. As my temperature was ok I was doing everything right. Lying down and resting till it passed over. To avoid a posse from tearing down the M5 from Worcs I did call my friend Laura who came round and sat with me till I felt calmer, well longer then that really - Thank you Laura.
My temperature started creeping up last night so a call to Ward 9 to confirm I could take paracetamol with my other drugs I had taken was made. I decided not to take a z tab to sleep as I wanted to check my temperature again. I managed to get off to sleep and even though I woke up every 2 hours or so I was able to go back to sleep without struggling. This carried on right through to around midday today so feeling quite chuffed.
Feeling quite tearful and sorry for scaring you Phillipa but thank you and to Caroline for popping round.
I am really excited about our camping holiday in North Devon which starts Saturday with my sister, brother and their families. I am sure fresh sea air and more rest will help and I can always stay in bed all day there as well as I can here :-)

Chemo Round 7 Day 1 Penultimate session !!!

How Cool is that I feel fab !!!Only one more session left and they cannot surprise me with any more !!!! Have to share a poem my friend Caroline sent me to keep my positivity up - Chemo is fab, chemo is fantastic. Sometimes it feels bad, sometimes drastic, however that little blighter will soon be gone and you will hear me singing this song, Chemo is fab, chemo is fantastic, "Bring it on", "Bring it on".
I know it hasn't been brilliant I have 6 weeks + before starting to feel better but with Cruella shrinking as well I can honestly say,"Aint been brilliant, it's not nice or pleasant in any way but has all been manageable". Thanks Daria and everyone else for your wonderful comments either by email, text, phone, facebook, face to face, cards, posters and presents. I cannot explain how or why but it all helps in my dark moments and I don't feel so alone.
Have managed a few days work as well which makes me feel useful but I'm not overdoing it but it is good seeing everyone and getting out for a few hours.
Some really good news today, my brother Colin emailed and he has had the ok to join us on our camping holiday in North Devon in 2weeks time and he's got onto the same camp site as us. I'm not sure who's more excited me, him or Holly, rr haven't spoken to Kerian yet :-)
Well still to get some complan in for next week. Drinking lots of water as my throat is dry but ready for next weeks rest..... 3 weeks to go before my last chemo session hooray !!!

Chemo Round 6 Day 16 - Cruella is still shrinking !!!

I have had confirmed that Cruella has now shrunk from 21mm at the last ultrasound scan to 15mm. Way to go hey. I am pleased only 2 more chemo sessions to go starting next Wednesday. It is overshadowed by me having an Anal Fissure (tear) which is the cause of great discomfort and I am endeavoring to do all things associated with softening the contents of my bowel. Sometimes it works and sometimes it doesn't. It worked this morning so I am relieved.

I have been into work for a few hours Wednesday, few more on Thursday and going in this afternoon after my reflexology. Nothing strenuous, shredding and answering calls on reception. Enjoyed my time spent there and felt useful.

Feeling tired, (No change there) mouth getting back to normal which is a relief, all ready for next weeks chemo ....

Chemo Round 6 day 9

My bloods have definitely dropped. Cry at the slightest thing and I am so tired. Doesn't help with an inflamed skin tag guarding my bowel entrance but Dr has prescribed Naproxen so have fingers crossed.
As I am not well enough to drive I hitched a lift to Cheltenham station with Colin and Sandra as Sandra had got Colin an appointment there today. I stayed in bed all afternoon, went to the Docs for my drugs, tried to eat and went back to bed. I feel so exhausted. Holly's been out shopping in Street with the Bebbingtons. Thanks guys.
I have just had an update from Colin. He has had his first of 5 doses of radiotherapy today at Cheltenham. This is good and well done Sandra for not accepting the 1st appt of next Wednesday :-)

Chemo Round 6 Day 7

Side effects has not been severe as last time however they have been present. Muscle ache and mouth being sore are the worst. Constantly using the mouthwash since last week has helped and ibuprofen are keeping things at bay.

For those of you who know my brother Colin and are aware that he has 2ndry kidney cancer in his lungs, sadly more nodules have been discovered in his brain after a scan. I am in Worcester at the moment but thankfully he now has an appointment with specialist on Thursday in Cheltenham. Providing I can grab a good nights sleep and ensure i am ok I hope to go home soon now. Whilst i know i have to look after myself i couldnt leave until the appointment got confirmed which it did today.

Sue

Chemo Round 6 Day 2

Yesterday's chemo went through without any hitches this time. I suspect this was because they have reduced the dosage by 10% to ease the severe side effects I had last time. Slept through the night with the help of a z tab but had to be done. Feel tired today still so just chilling.

Pat have uploaded a picture just for you taken at the end of June with me wearing Dolly. I look really well apart from the bags under my eyes and it's quite deceptive as I don't feel as well as I look. I delayed my chemo for a week to go to London for Leina's brothers wedding and met up with Cathy & Polly on the Sunday. Had a fabulous weekend which has broke up the recent routines of needles, scans and such like. I'll place one with my bandana on next blog.

Going to Hereford the weekend to relax with Leina and Paul can't wait and fingers crossed for minimilistic side effects that are due to start Tuesday -but am all prepared !!

xx

Chemo Round 5 Update

Had pre assessment today and bloods are ok to proceed with round 6 tomorrow. The breast care nurse appeared for my appointment today ummm.... Due to the severe side effects I experienced they are going to reduce the dosage by 10% and all systems go for tomorrow. I have ice, ice cream, drugs, straws, tinned soup and mouth wash which I have already started to take. Any change I have been told to phone in no matter how trivial apart from if I stubb my toe of course. I should be more aware this time I suppose and I've made it clear I do not want to go to MAU again so fingers crossed.

I have ultra sound scan 5th August, pre assessment for round 7 11th August and first meeting with surgeon on 13th August to discuss surgery options. All go at the moment.

Chemo Round 5 Day 13

Last Sunday I weighed 13st 2lb. This morning I was 12st 8lb. There has to be a plus side.
I got worse before I got better and because I didn't want to eat or drink much I didn't want to get out of bed either. Crushed ice (cheers Wendy ) before food helped and ice cream.
Unbeknown to me, Lynne was not happy leaving me on Friday so had confirmed my current state of health to my sis and picked her and Laura up from train station Friday morning.

Rachel took charge, phoned Dr again, applyed for Mobility badge for car, booked campsite for August holiday and took me off to hospital for brain scan. I was so glad she was here. Being hungry and thirsty because you don't want to eat is ok but when you can't because of scan is worse. I just started crying again in waiting room, tired hungry and thirsty. Scan complete and drank water mix of salt and sugar. I couldn't taste a thing. Tea was lovely, Laura made mashed potatoe just for me - Thanks Laura.

Saturday afternoon Kerri and Wendy turned up which was lovely. I did go back to bed for a bit and it was lovely hearing all the laughter going on as the Wii Fit was put through it's paces.

My temperature started to go up again on later on but fully armed with Paracetamol soon had this back under control and downed some food. Ate more as i was picking so that worked out well thanks Kerri and Wendy :-)

I am starting to feel better now, my mouth still hurts but is starting to heal so feel there is an end in sight. The Last 7 days have been the worst since I started chemo and Round 6 is due to start next wednesday. Previously I have been back at work this point in cycle. Today I'm chuffed I got up and ate something!!!

Chemo Round 5 day 7 - No Pain no gain !!

All I can say is what a turn around from breezing through managing side effects of the 1st 4 rounds then bang it it me like a brick. Tingly fingers and muscle ache like I've never experienced before started Sunday night. Mouth on fire and hadn't apprecicated my termperature was rising. Lynne took one look at me and was on the phone to the oncology then GP's before taking me to the Medical Admissions Units. This was not a pleasant experience and wont rush to go there again but I will take that up with the hospital. My temperature started to come down after being given paracetamol. Hey we all know that logic but logic went out of the window. I didn't get anything for my mouth until I was about to leave and currently I'm loving porridge!!!
I am feeling loads better then I was , shocked at how ill I dipped to. I have no energy, have to rest after eating porridge !! Lynnes making sure I keep fed and hydrated as because of my mouth i don't want anything. Getting back my sense of humour. Plans for Round 6 have now been laid. Paracetamol, iboprofen, teach Holly to make Porridge and she loved Dinner at the bebbingtons. Thank you guys !!!

Still not sleeping properly yet telling me my organs are still working overtime to detoxify the drugs through my system. My hair groweth is getting stronger which I find bizarre. Born again blonde on her way :-)

Chemo Reaction Update

Hi everyone, well Lynne thought she was gonna have a nice week off visiting Sue! Ha ha, Sue has other ideas!! Ok, well maybe not Sue!

This is just to let you all know that Sue hasn't been feeling very well, she's suffered with some side effects of the new chemo drugs. (Sue will fill you in on the technical details)

Lynne took Sue into Hospital earlier this afternoon as her temperature had shot up and she was feeling more wierd than normal!

As ever, getting her priorities in order, Sue asked me to update the blog to let you all know that she's ok and will be back informing you of all the gory details when she's feeling a bit better.

We'll be in touch very soon to let you all know how its going.

Rachel xx

Chemo Round 5

I know I haven't been updating the blog recently and sorry to those folks who rely on this to see how I am doing. The last 3 weeks have gone really quickly. Yes I have had a 4 week cycle again as Holly and I were invited to London for a wedding and also took the opportunity to catch up with some lovely friends.
An additional side effect of a burning sensation in my mouth added to the usual tiredness and changes in my bowel movements but again I have really breezed through round 4. Even went into work for over a week as well. Took time out in Torquay for enforced rest whilst Holly was on a school trip and made me realised how much I am NOT resting. Ooh no surprise there then :-)

So Monday I was buzzing. I had a faboulous weekend and gave myself 3 things to do when I have recovered from Chemo and my concentration levels increase. My pre assesment appt would confirm only 2 more cycles left and I was going to book our ferry and campsite to France for the end of the Summer. Nope this was all taken away from me Tues morning and I was gutted.
It started off wrong by me thinking I was 20 minutes late for my appointment when in fact i was 1 hour 10 mins early. Wrang work then settled down. Clinic was running late and I was seen just before 12pm by the Specialist Chemo Nurse. My bloods ticked all the boxes, side effects managable, she checked my mouth which had cleared up all ready to go for chemo. I have a concern about my short term memory and after disccussing this with her she felt it best to see the Dr and off she went. Dr arrvied with my notes as I havent had the offical results of my ultrasound scan . Cruella has reduced from 31mm to 21mm :-) . Repeated my earlier conversation on my concerns and Dr reassured me that this was common however would book me a CT Scan on my Brain. Also she had some news on my Treatment plan and that due to my age and origional size of Tumour that they have decided to change my drugs from FEC to Docetaxel (Taxotere). This is to increase the schrinkage for a cleaner masectomy. oh and yes that there would be 4 more courses starting the next day. She went to get an information leaflet for me to read and also made it clear that I didnt have to change but this would following NICE guidlings and positive results on other patients. I couldnt hold it in I cried. Additional side effects to be warned about are fluid retention particular in the feet, tingling in the fingers and muscle ache. I felt so dissappointed and we went through my chemo planner and happy to move the last chemo cycle to accomodate holiday plans. Off I went , got to work for 1pmish after scraping the side of Bluebell on the post. I was desperate for my refreshing cold sparkly drink so went to pop across the road mut Margie could see I was still traumatised and came with me to the stairs and off I went again. I hadn't had a trauma for ages but soon calmed down and reassured her I wanted to attend the pm meeting with my new team and was desperate for food and drink.
Before I left for home Kath turned round and sasked if I wanted her to come with me wednesday as there were still some clarity required and also pointout that the mornings events hadn't been handled well as I had no idea I was going to discuss a change of treatment and should have had someone with me. I accepted her offer of help. (Dont faint) and Kath called 9am and after a chat off we went.
First plan was to speak to the Breast Care Nusre - non available or Consultants so we went to the Beacon Day Centre (new oncology centre) and advised the Nurse what had happed and I need further clarity from Consultant before proceeding with the Chemo. Thankfully we were able to see the same Dr who not only apologised but advised she complained to her manager about yesterday's event. Not just me they had too busy a clinic and she felt she couldn't do her job the way she would have liked. We went through the treatment plan again and Kath also pointed out that being a single parent this impacts on my home life in terms of arranging support and taking this plan into September where Holly starts big school and yes holidays can always be rearranged but there would be dissappointment not just for me. We also agreed that in future I would not come to my Pre Assesment Appointments by myself. I have had Breast Care nurse before this didn't happen. Dr suggested we go and have a think and chat and come back and let the Nurse know what we had decided.
We did do this and discussed the other options and I felt comfortable taking the opportunity of changing the drugs. I felt I had now reviewed the choice I had and not rushed into things. Showed Kath where she could find me later, and got settled into be hooked and drugged up.
Firstly I had to have a steriod injection and left for half an hour - oh joy. Ray & Denise were there fromn the CAFE support group I go to and the lady I was waiting with yesterday the time flew. then my drugs finally arrived and the infusion started, Nurse Lorna handed me the buzzer in case I needed anything. This was new, they had never done that before. Well 10 minutes in and I could feel heat moving up to my face from my neck and I was not able to breath properly. Initialy I thought I was imagining it as I knew I was still traumatised as I call it. Ray called over , are you alright no i don't think I am. Have you pressed your orange button. No but did. Lorna came back along with 4 other nurses, my tears flowed. They stopped the infusion, pulled curtains round and passed me the oxygen mask. I calmed down and they explained that I had had a reaction to the drug and would have to wait now and take my obs and get the dr to see me. Got injected with someting couldnt rememer what they told me. Blood pressure ok, pulse ok, Dr breezed in looked at me at went out again!! Told this to Lorna and she said that was all she needed to do and that she was restarting my drug infusion but slower and stayed with me. When I had got past the point where I had reacted and all was fine she placed it on the same speed as before . Kath turned up with Karen (work colleague - cancer manager at trust) I started crying again as I told them what had happened. Karen had brought me a beautiful posie of flowers as well.
The rest of the session went by uneventful, Felt really sleepy but I had been injected with piriton, I thanked Ray for making me realise I wasn't imagining the reaction I was having. After getting my next appointments sorted I was about to call Kath and she turned up to take me home. What a day and it wasn't over.
Holly, bitterly dissappointed that I have decided we are not going to France ( KIDS !!) and asked where in this country would she like to go, decided to take herself off to the library to get the next book in the series she is reading, came back in tears as she had met a couple of school friends and the lad through a ball at her but it hit the back of her head and not being a soft ball was a hard ball. So I had to be nurse for a bit :-) She's ok now , a lump has developed and she can take this up with Jake today at school.
I have had a good night sleep waking up before 6am and feel quite chipper. Watch this space .....

Chemo Round 4 Day 7 - Cruella is Shrinking

I feel so tired but completetly elated that the ultrasound scan today confirms that Cruella has shrunk in size by 9mmish and the density has also reduced. I celebrated with an Iced bun and bought a Jam doughnut round !! (Holly ate hers without licking her lips). I feel so happy and lucky.

I suspect now that I will stay on the origional treatment plan of 6 cycles which means only 2 more to go. Won't think about surgery yet still a long way off .

Still feeling incredibly tired and managed a power nap today so feel quite chuffed.
Big smiles all round :-)

Chemo Round 4 Day 4 am

I am feeling much better this morning. Could have done with a bit more sleep but feel releaxed and pottering around the house tidying ect. Am planning a power nap before taking myself off to the pictures, Holly's at her dads and I have some friends arriving later.

My reflexlogy yesterday was wonderfull. Felt tearfull on way over , feeling tired and bored with all this now but reminded myself that I had managed 3 rounds , doing 4 at the moment and only 2 left to go (providing Cruella shrinks) and pulled mysellf together. Fell asleep in reflexlogy and a wonderfull session at meditation and felt much better about everything.

Still forgetting to take tablets which is abit annoying but at lease it was only one and not days this time.
Thanks for my messages Kerri amd Leina and will be in touch soon.
Sue xxx

Chemo Round 4 day 2

Well following last night's vomiting debut, my dinner decided to follow suit as well even though I had taken the anti sickness tablets. Went to bed pretty early and called hospital but just to let them know more then anything else. Checked my temperature which was ok. My friends was staying over last night so felt comfortable that I could go to hospital if necessary without worrying about waking the Bebbs up for an impromptu stopover so holly didn't wake up in an empty house.

Breakfast has stayed down and so far so has lunch so I think I had drank too much water for my body to absorb hence the rejection and it felt the same way about my dinner and the anti sickness tabs didn't stand a chance. Slept well though till gone 7am and still tired today but just just relaxing. So far so good ...

Chemo round 4 part 2

Well I was doing good. The experience was ok. Met some more lovely people and didnt cry. Still can't look though. Drank loads of water but sadly brought it all up. Didnt think i'd need antisickness tabs for water. Have kept my tea down so far but feel really crap and off to bed.
Holly doesnt feel to well either so I didn't push for her to go to scouts which has saved me a trip.

Off to bed now will catch up tomorrow

sue

Chemo round 4 Day 1

Well my pre assesment appointment yesterday was promising. My bloods are ok so I get the thumbs up for chemo round 4 (ok i snuck in an extra week as I went to Cornwall). Side effects have been manageable. It was not because I forgot to take steriods that I didnt have any mouth ulcers I've been assured by my Oncoolgy Dr that the chemo causes that (Oh well).

I think Cruella is shrinking as I cannot feel her through my bra any more and the Doc had to look hard for her yesterday as well. Fingers crossed that the Ultrasound scan next wednesday confirms the same. That would be great
My friend Bianca is doing the Race for life today at Silverstone. She has never done this before and is purely motivated by what is happening to me even getting her hair shaved when I had to do mine as it was falling out. If you havn't sponsored anyone yet and want to http://www.raceforlifesponsorme.org/biancamcgarry and don't forget to gift aid your donation.
I am going to take the DS and play Suduko today to take my mind off needles. Will be in the new Beacon Centre so not as cramped as previous visits. umm will let you know if this works

Sue xx

Chemo Round 3 Day 12

Well last week was a mixture of feeling great to feeling awful. Monday morning woke up after a good nights sleep and felt great. Tuesday felt even better. I'm doing work from home round my appointments. Wednesday, as I was working from home it came over me like a wave feeling nauseous. Shut down my laptop and took myself off to the sofa and watched a DVD and dozed before my afternoon appointment that day. Felt better in the evening but Thursday felt terrible again. Phoned hospital as didn't know whether to take my anti sickness drugs and or steroids to help. Before the nurse phoned back, I'd been to the Drs and took myself back off to bed after having a slice of toast. Anyway the confirmed that at day 8 I should only take the anti sickness tablets and call Friday if I felt no better. I didn't get up till 2pm and managed to get in at the hairdressers to have a fringe put in Dolly (wig) increasing this weeks of appointments to 9! Friday I felt fine again. A bit tired but not feeling sick hooray, in time for the weekend where Sarah and Cathy were coming round and we had a lovely time having foot spa, and giving feet hands and face a makeover with fabulous food and the odd glass of wine.

This morning been awake since gone 5am but feeling ok. Mouth has done well this round and feels normal , no ulcer. Just tiredness and feeling sick so not too bad really. Planning to work again this week around 2 appointments I have but still taking it easy.Got to save my energy for Cornwall next week he he. :-)

Chemo Round 3 day 5

Well my mouth is still ok, I'm not ravenous like this time last cycle, just incredibly tired.

Have had a lovely weekend starting with Lynne calling in who ended up cooking our tea whilst I had a nap as couldn't stop yawning. I did some aromatherapy massage and I got my crystals out. We both had the best night sleep for a long time but not enough to stop me going back to bed Saturday, after checking if there was any Rhubarb left at our local pick your own and there wasn't. I'm wondering if I'm resting too much as I am not exercising much apart from what I do on the Wii fit (ok walking as well). With that in mind I accepted an invite to my friends dads 70th Birthday party Saturday night. Holly even volunteered to help out with decorating the hall etc. Thanks Laura and Alex, Holly thoroughly enjoyed herself and when we both turned up later in the evening it was Sue Holly and friends enjoying themselves and I lost the Sue who is living with breast cancer.

After a restless night sleep, I carried on this thought of Sue and Holly doing their thing and took us off orienteering. We didn't get lost after finding the starting point and thoroughly enjoyed the walk. Stopped off at a car boot sale on the way back. Holly groaned but happily took part in the purchases we made. Came back had dinner. Nige came round with some shopping. I am useless at asking for help but when Anne put's you in a corner with "We're off to Asda do you want anything?" it works and really appreciated it even if I didnt have the main ingredient for Rhubarb Crumble!!

Every day next week I have an appointment with 2 appts on Friday. Already I am feeling anxiety over it all. Thankfully not having a midday sleep and taking part in some excercise today will induce a good nights sleep. Watch this space...

Chemo Round 3 part 2 !!

Thanks for that update Rachel.
I knew it was going to be a long day Wednesday. Tuesday started off ok. Went to work before going to CAFE group. Had a neck and shoulder massage and some crystal healing before getting to the Hospital for a blood test and pre assessment appointment. Was'nt kept waiting long and was called in to see the Oncology Dr. He asked me what I understood about the Ultra Scan that I had last week. I confirmed that I knew that Cruella had'nt grown but not shrunk either and they may change my drug combination extending my chemo by another 6 weeks. He agreed with this but advised that the decision on changing the drugs would not be made until after cycle 4 and would like to examine Cruella still. I went to the bed and took my top off and before I could take off my bra he asked what I was doing with a rock in there. I was gobsmacked as this was a rose quartz that was placed when I had my crystal healing and couldnt believe I had walked out with it and all had a giggle over it. We touched the subject of surgery as I need to know timings from a practical point. It will be after chemo and likely to be September. He mentioned that I could do with loosing weight for reconstruction but I dont want to know the details yet. This appointment didn't take long, only an hour on the car park.

Decided that I would walk to the hospital Wednesday, got their earlier to look round the new cancer centre that is opening on Monday. Went off to have my chemo, my appt was at 11.30 but took an hour before I even got hooked up. Yes I looked away and cried. I was left for ages before they brought in my drugs. They didnt loose my lunch this time. They were not ready for me and on checking they were not expecting me till 2pm. It was 1.45 pm before I got out the room. As I had another appt at 3 had agreed to meet up with a friend who was with her mother having her first chemo at 2. I loitered till about 2:45pm and carried on chatting in the waiting room with the other people that were there. Then I went off to my counselling appt and more tears flowed. Got out around 4.15 and decided to walk into town and catch a taxi or bus as was knakered but then one of our senior team was leaving the hospital at the same time and gave me a lift home. Bonus !!

Felt absolutely knackered and tearfull when i got in. Holly was not feeling well either. She's been with her Dad the weekend and we got told Wednesday evening that her sister has chicken pox so I think she is fighting that breaking out. Decided only fish and chips would do and that is what we had. I didnt reaslise till this morning that I hadnt taken my anti sickness tablets but wasnt feeling sick or anything.
Didnt sleep well last night. Got Holly home as well today as she's still poorly. Got back to bed around 12 and didnt get up till 2.30pm. Wasnt hungry this morning and didnt eat until I woke up this afternoon. Left most my tea as well but have decided not to take my anti sickness tablets as still not feeling sick. As advised by at the Dr earlier I have started to take Senna now rather then wait to be consitpated.

Also my next Chemo appt is going to be moved from the 27th May to after my holiday in Cornwall, 3rd June. I did say we could come up for the day if they change the date as it was actually on Holly's birthday but the team are happy to let me delay the chemo for a week. I'm chuffed i'm not interrupting our holiday but not chuffed by extending my treatment but then whats another week and lets hope it's not another 6 weeks that will get added if my drugs are changed.

Chemo Round 3 – Day 1

Sue ok but not feeling like writing anything much. So you got me here today, on Sue’s behalf, I’ll try and keep it brief.

Ok, Sue went and had a look round the new Cancer Centre today, and was very impressed with it all. I know it sounds wrong, but she’s looking forward to using it.

Bit of a mix up with her Chemo appointment time this week, her card said 11.30, but they had her booked in for 2.30, oops!!, so she ended up being there quite a bit longer than expected, which had not been good for her today as she was already not feeling particularly good.

Whilst waiting for her appointment with the counsellor, Sue met up and chatted with some people that she’d met previously, who are also having treatment.

Sue felt the counselling session went well and has realised that she’s holding onto a lot of stuff and has worked out a programme with the counsellor to help her deal with her issues.

As she left the hospital to walk into town to get a taxi, a member of the senior management team drove past and gave her a much need lift home.

Sue wanted to say that although she’s feeling very weepy, she’s doing ok and not to worry and will be reporting as normal soon.

Rachel x

It's Ok to Cry

I do know that but not over nothing. Must be me hormones....

Tuesday I found it a real effort to go to the CAFE group but I was motivated by knowing I would feel better for it. When I got back I had a card in the post from Rachel of the painting we saw in the Birmingham Museum January of Monte Civetta from Lake Alleghe by Elija Walton. This made me estatic as when I use meditation and mountains are mentioned this is what I was visulising before I had even seen it. The painiting in the museum is one awsome sight.

I had a Ultra sound scan Wednesday and Cruella hasn't grown but hasn't shrunk either. Will know more on Tuesday when I go for my blood test and pre assement appointment as to what changes may be made. Either change of drugs or surgery brought forward. I can't deal with the surgery details at the moment only the timings for practical reasons.

It was good when I got into work. It is lovely to see everyone and I managed some work as well. A small bit of normality surrounding the Hospital and Dr's appointments. Can tell when I start to feel better as I even bought a bottle of wine on my Asda trip and had a glass (ok 2 ) with dinner. Will have managed 2 and half days this week!

I have a mouth ulcer that is annoying me and is not responding to Anbesol so I am going to ring the Dr's to see if they can prescribe anything stronger. Any ideas welcome.

I am really looking forward to the weekend. Holly is off to her dad's for the weekend but Rachel and Laura are coming down. Saturday we are just staying here and chilling, may get Laura to finish the cleaning patio and mow the lawn. well ok it's worth a try :-) Sunday we are going on a day trip to North Devon so the sun better come out to play.
Hope everyone has a lovely weekend like I'm going to , have a good un

Sue

Summary of Chemo Round 2

Well I'm on Round 2 Day 12. I have noticed a difference from day 9 (Friday) onwards with tiredness and my nose has started to bleed, spots but bleeding all the same and as it's my blood I found the first episode traumatic. Please note the use of the word FIRST as I am cool with it now however I did phone the Hospital and burst out crying to them that my nose was bleeding but not horrendously and wanted to let them know and confirm what I would need to do.

I am sleeping ok now but some mornings I wake at 6am but then I managed to back to sleep Sunday morning and didnt get up till 9am. I am going to back to bed around 11.30 am and getting up around 1:30 - 2pmish. I dont like being in bed when Holly comes home from school.

Kerri came down from Worcester Saturday afternoon, laden with all things healthy (including Red wine as in small doses...) We also went into town and I bought another beanie hat and some more scarves. Kerri also bought me a lovely hat which I wore Sunday afternoon when I took Holly to her St Georges day parade with the Scout and Guide movement. We finished off the evening with a spot of Wii fit , and a chinese takeaway with Vern who popped in on his way back to Brackly from Minehead.

Today I was awake at 6am so started reading a book kerri brought with her called The Breast Cancer Book which i am finding very interesting. I have a similar outlook and humour as the author. Holly came in and joined me around 7.15am so we chatted for a while which was lovely. I had said to her I might not be up and she seemed pleased I was awake but at least didn't insist I take her to school.

My nose keeps spotting blood or clear liquid, my right cheek has a red patch on it with some spot type lumps and I felt better after my mid morning nap. I am managing to sleep without Z tabs which I feel better about. I am starting to remember my dreams at the moment, they had been quite for a while now but have started up again so will start to write them down.

All in all round 2 again was managable, more tired from day 9. I understand my bloods are at their lowest but was amazed at the difference and how quickly the changes were. I had been ravenous from Sunday , then Friday morning woke up feeling great and within 2 hours I had lost my appetite, nose bleeds, tearfullness and more tired. How quickly it all changed was frightning on it's own.

I am preparing to work this week and already arranging some holistic care for diffusing the anxiety and trauma of blood tests and chemo next week. Time flies...

Life is for Living

I keep having these wonderful powerful thoughts even when I successfully have an afternoon nap. I will have to start writing them down but on their own you'll think I'm bonkers. Ok you already think that!

On Monday I started an experiment. I have shaved my legs and we are going to see how quickly the hair grows back. Today is Wednesday and still no stubble. I have had to trim my finger nails and my hair on my head is still falling out so this doesn't make too much sense. Scientists out there answers on a postcard please... .

Tuesday at the CAFE group I had a foot massage and some reiki again. Always come away feeling relaxed. Popped into work quickly after lunch and explaining how meditation and Rekie works really well for me, Sara asked if I stayed quiet enough for meditation , have to admit i do surpise myself sometimes :-)

This morning started out with the Marmite jar jumping out at Holly and smashing everywhere. Luckily she didn't hurt herself and her stomach ache went away. Finished off today being at the cimema to see 17 Again.

Good news received about Colin, he is having limited side effects on his HD IL-2 treatment he started on Monday at The Christie in Manchester for his cancer. I am so relieved although I do appreciate like myself these are early days. Good news all the same.

The weird feeling in my mouth has disappeared, the smelly eruptions are still happening, still feeling tired and incredibly hungry and looks like I shall win the title for the first in our family to be bald...

Over 1 third of the way through my chemo treatment !

That really makes me feel good saying that. I still have bruises from chemo day last week and still going through the smelly C&D and weird feeling in my mouth has started.

Holly came back Friday, she’d had a fabulous time with her dad and family. She was really happy, took her younger sister and brother into her room for some snatched play time. She looked away initially when I changed to my wig but then couldn’t stop her playing with the scarves on my head. We had a good chat and watched a DVD before Pat & Co arrived for the weekend. I decided to stay at home Saturday as was tired. Holly went out with the rest of them to Combe Martin and had a lovely day. Spent Sunday morning out at Chothlestone Hill where we found the horses. I could have stayed there all day although I couldn’t believe how hungry I got. I couldn’t wait for my dinner when I got home and ate a load of crap then a big pate of Sunday dinner on top. I was starving. This led to a 2 hour or more marathon sleep so didn’t do DVD with Holly.

When Holly went to bed I had the old “I’m no feeling too well”. Anxiety about going to school the next day. Normally I would let her get in bed with me but I have such smelly eruptions at the moment she agreed to go to her own bed.

This morning she was no better, managed to get her to bring us up both a slice of toast and me a cup of Lemon Green Tea and there we were having breakfast in bed. I encouraged her to eat her toast and by the time I had had a shower and got ready for my Dr’s appt, she was still crying and her friends turned up at the door to walk to school with her. This usually stops the visual display of her not being well, but I still walked up to school with them sporting my beanie hat and scarf and had a word with Mr J. She came back happy but still poorly. Chirpy enough to tell me about her friend at school finding my blog, chirpy enough to check that I had worn my wig when her other friend had seen me in Asda, chirpy enough to give me a manicure and pedicure outside in the garden and show me her skipping skills, chirpy enough to go swimming….... umm apart from balding head, C&D, weird feeling in my mouth, anxiety about the unknown, almost normal…...

Chemo Round 2 day 1.

Oddly but thankfully, I went back to sleep this morning after waking up at too early again. Also I was not feeling anxious either. I must bring meditation into my regular routine. Went to work this morning before making my way to MPH. I wasn’t thinking of needles I was thinking of playing with scarves with Linda from the SCC. I was calm when I went in, there was a bit of wait due to the new computer system but I chatted to patients and relatives in the waiting room.

My nurse called me and off I went into a different room this time. She had another clinical assistant with her and I was taken to the end of the room where there was a bed and chair but quite spacious. They pulled a cubical curtain across and started asking me how I was feeling and want they could do to help diffuse the anxiety I displayed on round 1. They mentioned if I had asked for some medication, can’t remember the drug name, I told them the difference I felt after the complementary therapy I had received at the CAFÉ (Cancer Aid for Everyone) and that I was still feeling ok and wasn’t feeling too traumatised. She confirmed she was going to use my left hand and arranged the infusion machine accordingly. I asked if I could place my arm and pillow on the arm of the chair and this was ok. I was on a roll, feeling relaxed, everything to my left, I could look right what more could I ask for.

The nurse and assistant went off and came back after quite a while with another nurse that has to be present when I confirm my name and date of birth. At this point Linda pops her head through the door and waves at me. Great she’s found me and will come back when I’m less popular.

I didn’t see any of the drugs, they were covered in the tray. I plugged my ipod in and looked right. The nurse and assistant were brilliant, I didn’t even jump with the prick, I felt relieved. They were doing what ever it was they had to do but nurse voiced concern over having pricked a weak vein and the impact this was going to have on my treatment and asked me If I was ok she would prefer to have a stronger vein. I was feeling brave and said I was fine but I couldn’t believe it. Them upstairs, can see I’m not as traumatised as before, and I’ve diffused the anxiety successfully without drugs, but still want to keep me on my toes. Well I showed them and braved it out!!!

So two pricks on my hand it was, lovely chat followed as the syringes were administered and then it was on the machine. I was asked if I wanted lunch and I hadn’t eaten since breakfast, time was getting on so said yes please. I could see a couple of the other patients in the room and was inspired by another lady receiving an infusion, using the hand with the cannular in to complete her puzzle book. I was feeling brave, I lifted the cloth covering mine. umm not too bad, put it back down again. I built up my courage and started to move my fingers, umm not too bad. Getting super brave now, took off the cotton wool taped to 1st prick and moved fingers again. Whey hey well done me! This left me smiling. My nurse had changed, it was Suzanne from last time and she was pleased to see me not so traumatised. The only complaint I had was that my lunch hadn’t arrived and I was starting to feel shaky. Bless although the other HCA had chased it up, Suzanne found that the volunteer had placed it in the fridge so relief came and so did Linda. I checked it was ok to say there in the chair and eat my lunch and for Linda to show me how to best use the scarves. The HCA and other patient joined in and I even got a sale for MPH as she liked what I had brought with me and we had fun. All done, bought another scarf and beanie hat, as Linda had kindly returned the wig for me that I’m not keeping and took my payment and delivery note to the wig lady whilst I was eating my lunch. I just popped over to check all ok and it was and I drove myself home!

Mouth started to water not too bad, had a sleep, need to work out how I can sleep in the afternoon but not get to sleep at night time. Karen called round on way home, I shed a few tears but not from self pity this time, just felt tearful. Had a lovely chat made some tea and ate it and kept it down. Currently don’t feel to bad…

Holly comes home Friday, called Pat who reminded me I am 1/3 of the way through my treatment plan. This sounds good and doesn’t time fly.

Sue

Twas night before chemo round 2...

And the house definitely quiet as Holly at her dad’s.

Well what a day. My anxiousness has been building up since Thursday. Not sure whether this was the hair starting to fall out or the changes at work but hey I can’t ignore how I’m feeling even if I don’t understand why.

Have had a lovely Easter weekend spent at home with visitors dropping by. Laura lou arrived Wednesday, Lynne stayed over Thursday, Penny and Philip called in on Saturday and Sarah called in and stayed over Sunday night. Very relaxing, got some jobs done, courtesy of Laura lou. Went to see the ponies on the Quantocks Monday. Strangely I had afternoon naps on Sunday and Monday. I find this strange as I can’t get to sleep at night but happily cat nap in the afternoons. Having discussed this dilemma I agree with possible cause being the anxiety I feel is draining my energy therefore making me tired.

I went to work wearing my wig. It was nothing to worry about. It’s just a change.
The anxiety I felt this morning was diffused by the time I left the Somerset Cancer Aid for Everyone (CAFÉ). I was met by the lady who sat with me on my 1st round of chemo (Linda) and she recounted that day to the others at the drop in and we were all laughing. I then had a neck and shoulder massage, healing and meditation. Linda also arranged to come and find me tomorrow at the hospital and we will try some head scarves on and she will show me how to do this. I would never believe I could write this but I am looking forward to my chemo session tomorrow. It is going to be easier then my brother Colin’s chemo, I get a personal head dresser into the bargain. I have also bought a eye gel pad to use whilst I’m being pricked. I came out feeling pretty chipper and went back to work feeling totally relaxed. If ever I needed evidence about relaxation techniques diffusing anxiety attacks I need look no further. I have to bring this into my daily routine.

I went to the hospital this afternoon for my blood tests and pre-assment interview. Whilst in the oncology department I met a lady there whom I met at CAFÉ. We have had a chat. She has finished her chemo and she looks well. Will I be able to do better? I was called in to my tests and off I went looking for a powerful distraction as needles in my body causes me a problem. Extraction of blood was not too traumatic. I had fired of a line of questions to the nurse and had to let her know she could stop now the blood extraction had been completed. When I came out there was another couple from the café group. Seemed like a mini reunion. I didn’t have to wait for long and got called in to be seen by the pharmacist. We summarised my side effects -- Orange pee, nausea, fatigue, cold seats, hot flushes, constipation, diarreah, constipation, foul taste in my mouth, horrible smells escaping from my bum, enflamed skin stag on guard on the bowel exit, tiredness but all manageable and finally hair falling out. I know this is going to get accumulatively worse but I feel I have completed first round successfully. My bloods have dropped from the bench mark tests taken before I started my chemo, but it is within their ranges.
I’m pleased that I can go through to round to 2.
oh well here goes...

Update

Hi All. Sorry not posted. I have been progressively bright but tired. Round 1 not too bad.

Been busy. I have instigated a referral to our local Hospice as an outpatient to receive complementary therapy. I met with another wig lady who was more then helpful then just the wigs. She’s given me contacts for well being clinics run for cancer patients so will give them a try as well

Went to group on Tuesday 31st March with Rachel, where I had a foot massage and meditation. Made sure Rachel got on the train home. Came home for my afternoon nap, Holly bounds in with “I’m not feeling very well so didn’t go to cook club” and subsequently didn’t want to go to school on Wednesday. We compromised and she went in after lunch.

I did eventually try a wig on in the house. Haven’t felt any enthusiasm to do this before. Karen and Chloe were saved when they popped round Tuesday, but Wednesday, after encouragement from lovely Irish wig lady, put on my wig to show Bianca, (who came down for a few days to pamper me). I was startled how brighter it looked when on not sure how that happened as it didn’t look that bright earlier.

Colin text me to check I was ok as hadn’t updated blog. See it works - takes all the pressure out of contacting everyone and I am pleased he’s taken up this idea. His treatment plan starts April 20th in Manchester. I will think of his treatment when I have round 2 of mine to distract me as mine is more pleasant. (Yes my chemo treatment is more pleasant)!

Thursday Bianca and I had a fabulous pampering day. The sun came out to support us which made me feel great. There is nothing like fresh sea air to blow the cobwebs away and make you feel better (even managed a number 2 toilet stop).

Bianca being here has been great for both myself and Holly. Thanks to all the McGarry’s, the boys for lending her to us and Bianca for being here. After our pampering on Thursday we did some spring cleaning on Friday. I have to mention the Hoover incident. Admittedly ours was on it’s way out however, after Bianca using it for a short time on Friday mine finally died. I changed the fuse, still dead, time for a new one. Who better to go Hoover shopping then with the girl that cannot live without her Hoover. We got one (which has been christened Bianca) and all was happy in the house again.

On Saturday 4th April after Bianca left I went to bed as I was just plain exhausted. With the help of half a z tab was able to get a few hours sleep. Holly, my lovely angel, had decided to get busy in the kitchen and made Fruit Smoothies and chocolate bunnies. The kitchen didn’t look too bad either bless her and she saved me a glass and brought that up to me in bed. When I felt better, off we went to pizza hut and then cinema to see Marley and me. We thoroughly enjoyed ourselves however I know it didn’t make up for her friend Luke not calling her to confirm their cinema outing...

Starting on Monday 6th April I went back into work around the appointments I had. I was anxious but it was great to see everyone and the anxiety soon went. I experienced some Reiki on Tuesday. Wednesday (Happy Anniversery Dave ) Laura lou came down on her own, and we arranged with my friend Alex to go to the cinema that evening. Unfortunately this was also the day that a skin tag that I have on my bum has progressively become inflamed causing me much discomfort. Thinking I was constipated again I took my senna and prune cube but the pain was getting on my nerves. Dr’s practice called to say my paperwork was ready for me to collect so I seized the opportunity to speak to the duty Dr who happily did a prescription for me for some Anugesic cream to relieve the pain and inflammation and Lactulose to soften the bowel contents. I was so happy what a service, went down and picked it up. Decided to go to the Asda pharmacy to get my prescription but they had no cream and asked if could I wait. I know I didn’t make the effort to phone the Dr’s but they had now given me hope and I wasn’t prepared to wait. The lovely pharmacist at Asda phoned the Pharmacy that I was going to next to check they had in stock what I needed!!! What another episode of fabulous customer service!!! Picked up Alex, went off to Sainsbury’s pharmacy. The pharmacist was concerned that the Lactulose would expire in June. Advised not too worried, being on chemo I suspect I would find it useful before the expiry date. I went to the ladies, applied cream, took potion and got the cinema before the film started.

What I hadn’t appreciated was that I was not constipated, my bowels just couldn’t empty with enflamed skin tag guarding the exit. Lactulose works very quickly, well certainly did in my case. I have never experienced such pain in my belly. I could feel the gas bubbling away but I wanted to watch the rest of the film. When it finished I did not hang around, I was almost doubled up in pain. Alex bless her offered me the use of her bathroom bit I declined and said I would be ok I just want my own bathroom and thankfully I made it. And Laura lou bless her cottons came in and passed me the cream to re apply as I had left this downstairs in my endeavour to relieve myself of my agony. Now there’s unconditional love ………

Thursday I was still in some pain but managed 2 number 2’s before leaving for work. Went to pub and enjoyed a pint of Guinness, medicinal purposes of course. Had a lovely evening, Lynne trooped up on route to Worcs however I realised I had not been imagining that I was moulting. I had been picking up hairs off my desk all day and my coat was covered. This morning Friday, I got my wigs out to show Lynne. A 2nd one had arrived but I hadn’t tried it on. Once I had tried both on I realised the 2nd wig was the one I was happier with. Fully resolved that I needed to book the hairdresser the next day as my hair was just getting on my nerves, picking it of my face, arms and food. Typical really, the day I need to get my hair cut, Good Friday everywhere is shut. And how lucky am I. Had 2 offers of help, Anne and Clair thank you both and thank you Anne for doing the honours. Salon a la Bebbingtons was not traumatic and I even had a bottle of cider thrown in. I know full well I would have sunk into self pity at a hairdressers but having friends around me taking the mickey, is what has helped me through today. When I feel a bit braver and got used to it I will post a picture of my Sinead O’Connor look. I am laughing as I’m stroking my hair and remembering when the venture scouts had their hair in a No 2 I used to do the same to them. Laura has called me uncle fester and asked me to put my wig on but she wouldn’t do the washing up so the wig stayed off and I started singing “Nothing compares to you”.

Evil Aunty Sue…